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Record W4401356774 · doi:10.1080/24745332.2024.2351454

Barriers to multisite research in Canada: Experiences from a minimal risk COVID-19 study

2024· article· en· W4401356774 on OpenAlexaffabout
Celeste M. Lumia, Samir Gupta, Don D. Sin, Teresa To, Michael K. Stickland, Janice M. Leung, Manali Mukherjee, Shawn D. Aaron, Kim Lavoie, Pat G. Camp, Geoffrey N. Maksym, Paul Hernandez, Andréanne Côté, M. Diane Lougheed, Erika Penz, Rachel Lim, Christopher Licskai, Andrea S. Gershon

Bibliographic record

VenueCanadian Journal of Respiratory Critical Care and Sleep Medicine · 2024
Typearticle
Languageen
FieldMedicine
TopicEthics in Clinical Research
Canadian institutionsUniversity of CalgaryQueen's UniversityUniversité LavalDalhousie UniversityOttawa HospitalHealth Sciences CentreSt. Joseph's HospitalUniversity of AlbertaUniversité du Québec à MontréalMcMaster UniversitySt. Paul's HospitalWestern UniversityUniversity of TorontoSunnybrook Health Science CentreSt. Michael's HospitalSt. Joseph’s Healthcare HamiltonUniversity of SaskatchewanHospital for Sick ChildrenUniversity of British Columbia
Fundersnot available
KeywordsDilemmaObservational studyCoronavirus disease 2019 (COVID-19)Institutional review boardHealth careResearch ethicsClinical researchResearch designMedicinePsychologyPolitical sciencePublic relationsMedical educationNursingSociologyPsychiatryLaw

Abstract

fetched live from OpenAlex

The ability to provide timely evidence-informed health care depends on high quality clinical research that responds to current needs and health crises. Canadian researchers doing many types of research have faced significant challenges obtaining timely research ethics board and institutional approv­als for research causing premature termination of studies, study delays, wasted resources and, crucially, missed opportunities to improve clinical care and outcomes. To illustrate such challenges, we refer to the minimal risk, multisite observational study we are currently conduct­ing, examining the long-term respiratory health effects of COVID-19. As a COVID-19 research study, it was pur­portedly prioritized for review; however we experienced long delays in study approval. Three main factors contributed: lengthy and repetitive REB review processes, discrepancies in REB and institutional requirements, and multidepartment approval requirements. Delays in research study approval impede new knowledge and, ultimately, improvements in patient care and health. This in itself, represents an ethical dilemma that we can no longer ignore.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.113
metaresearch head score (Gemma)0.191
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesMetaresearch
Consensus categoriesnone
DomainCandidate signal: Methods · Consensus signal: none
Study designCandidate signal: Qualitative · Consensus signal: Qualitative
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.899
Threshold uncertainty score0.730

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.1130.191
Meta-epidemiology (narrow)0.0000.001
Meta-epidemiology (broad)0.0020.001
Bibliometrics0.0020.005
Science and technology studies0.0390.014
Scholarly communication0.0130.003
Open science0.0060.011
Research integrity0.0050.009
Insufficient payload (model declined to judge)0.0060.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.377
GPT teacher head0.565
Teacher spread0.189 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.

Study designQualitative
DomainMethods
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations0
Published2024
Admission routes2
Has abstractyes

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Same venueCanadian Journal of Respiratory Critical Care and Sleep MedicineSame topicEthics in Clinical ResearchFrench-language works237,207