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Record W4402341977 · doi:10.15453/0191-5096.4719

Diverging from Conventional Autism Research Through Meaningfully Including an Adult Autism Community: Processes of Engaging Ottawa’s Adult Autism Community in Critical and Emancipatory Autism Research

2024· article· en· W4402341977 on OpenAlexaboutno aff
Margaret Janse van Rensburg, Courtney Weaver

Bibliographic record

VenueThe Journal of Sociology & Social Welfare · 2024
Typearticle
Languageen
FieldHealth Professions
TopicHealth Policy Implementation Science
Canadian institutionsnot available
Fundersnot available
KeywordsAutismPsychologyDevelopmental psychology

Abstract

fetched live from OpenAlex

Traditional research practices that aim to find causes, cures, and fixes for autism, without meaningful involvement of Autistic individuals, undermine disability justice and the inherent value of the Autistic perspective and Autistic contributions to society. Limited studies address the process of inclusive research and upholding disability justice principles; therefore this paper presents the process of a participatory planning stage for a research study committed to disability justice and social change for Autistic people. Drawing from the principles of disability justice, including intersectionality, leadership, anti-capitalism, cross-movement organizing, and collective liberation, the paper outlines both the successes and obstacles encountered during the planning stage. Through methods such as participant observation, documentary research, and unstructured interviews, this paper displays the process of actively engaging Ottawa’s adult autism community in the development and execution of research, promoting community priorities and fostering meaningful inclusion strategies. It contributes to the advancement of disability justice and emphasizes the importance of centering the voices and agency of Autistic individuals in research endeavors. By including the adult autism community in a meaningful way, this research diverges from conventional autism practices by engaging Ottawa’s community in critical and emancipatory autism research.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.057
metaresearch head score (Gemma)0.011
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesMetaresearch, Science and technology studies, Research integrity
Consensus categoriesMetaresearch, Science and technology studies
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Qualitative · Consensus signal: Qualitative
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.249
Threshold uncertainty score0.998

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0570.011
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0010.000
Bibliometrics0.0010.001
Science and technology studies0.0170.005
Scholarly communication0.0000.001
Open science0.0010.001
Research integrity0.0010.016
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.726
GPT teacher head0.689
Teacher spread0.037 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; both teacher heads agree on what is shown here.

Study designQualitative
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations1
Published2024
Admission routes1
Has abstractyes

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