P.326: Perspectives and experiences of women with a kidney transplant on access to healthcare – an international qualitative study.
Bibliographic record
Abstract
Women in Transplantation Pillar 3. Introduction: Globally, more women than men live with chronic kidney disease, though women are less likely to receive a kidney transplant. We aimed to describe the perspectives and experiences of women with a kidney transplant on access to transplantation and associated healthcare. Methods: We conducted semi-structured interviews with women with a kidney transplant over the age of 18 years from 16 countries from August 2022 to January 2024. Transcripts were analysed thematically. Results: Thirty-nine women were interviewed, ranging from 27 to 72 years. Participants were from high (n=21), upper middle (n=6) and lower middle (n=12) income countries and 17 spoke English as a first language. We identified six themes: social vulnerability in preventing access (with subthemes of spousal/family dominance in decision making, financial dependence on others, reversal of role as caregiver), disempowerment and loss of control (forced to relinquish decisions about their body, exhausted from self-advocating) and systems unresponsive to individual needs (overwhelmed by information, unreliable supply of medications, navigating silos within healthcare systems, inability to access genetic counselling), struggling to achieve parenthood (grieving lost opportunity for pregnancy, medicalization of the journey to motherhood, exploring other options to have a child, difficulty parenting with chronic illness), broaching gender sensitive and taboo topics (loss of sexuality and libido, stigma of mental health impacts, managing menopause, impaired body image, embarrassment about incontinence) and yearning for peer connection and mutual empowerment (forming platforms for sharing experiences, education and support). Conclusion: Women with a kidney transplant face social, financial and cultural barriers to accessing transplantation. More specific challenges related to post transplant care included reduced access to support for psychosocial wellbeing and body image, women’s health and family planning which is of priority for recipients. Improved availability of educational resources targeted at women about transplantation, which includes family planning and women’s health will create awareness and empower women to strive for equitable access to care and health outcomes worldwide. Women in Transplant, TTS.
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How this classification was reachedexpand
Full frame distilled prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.
Codex and Gemma teacher scores by category
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.000 | 0.000 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.000 | 0.000 |
| Science and technology studies | 0.000 | 0.000 |
| Scholarly communication | 0.000 | 0.000 |
| Open science | 0.000 | 0.000 |
| Research integrity | 0.000 | 0.000 |
| Insufficient payload (model declined to judge) | 0.000 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one teacher head, not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".