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Record W4403819347 · doi:10.1093/braincomms/fcae377

Autosomal recessive <i>VWA1</i>-related disorder: comprehensive analysis of phenotypic variability and genetic mutations

2024· article· en· W4403819347 on OpenAlexfundno aff
Sara Nagy, Alistair T. Pagnamenta, Elisa Calì, Hilde M. H. Braakman, Juerd Wijntjes, Benno Küsters, Marc Gotkine, Orly Elpeleg, Vardiella Meiner, Jerica Lenberg, Kristen Wigby, Jennifer Friedman, Luke Perry, Alexander M. Rossor, Anna Uhrová Mészárosová, Dana Thomasová, Saiju Jacob, Mary O’Driscoll, Lenika De Simone, Dorothy K. Grange, R. Brian Sommerville, Zahra Firoozfar, Shahryar Alavi, Mahta Mazaheri, J. Parmar, Phillipa J. Lamont, Veronica Pini, Anna Sárközy, Francesco Muntoni, Gianina Ravenscroft, Eppie R. Jones, Declan O’Rourke, Melissa Nel, Jeannine M. Heckmann, Michelle Kvalsund, Musambo M Kapapa, Somwe Wa Somwe, David Bearden, Arman Çakar, Anne‐Marie Childs, Rita Horváth, Mary M. Reilly, Henry Houlden, Reza Maroofian

Bibliographic record

VenueBrain Communications · 2024
Typearticle
Languageen
FieldBiochemistry, Genetics and Molecular Biology
TopicCongenital heart defects research
Canadian institutionsnot available
FundersNational Eye InstituteNational Heart, Lung, and Blood InstituteMedical Research CouncilDirectorate for Biological SciencesMedical Research Council Centre for Neurodevelopmental DisordersMedical Research Council CanadaSparksH2020 European Research CouncilAtaxia UKNational Institute of Neurological Disorders and StrokeNational Institute for Health and Care ResearchBrain Research UKAlzheimer’s Research UKBroad InstituteMultiple System Atrophy TrustRosetrees TrustBiotechnology and Biological Sciences Research CouncilMichael J. Fox Foundation for Parkinson's ResearchMinisterstvo Zdravotnictví Ceské RepublikyMuscular Dystrophy UKNational Human Genome Research InstituteNIHR Oxford Biomedical Research CentreWellcome Trust
KeywordsGeneticsPhenotypeBiologyGenetic analysisMutationGene

Abstract

fetched live from OpenAlex

Abstract A newly identified subtype of hereditary axonal motor neuropathy, characterized by early proximal limb involvement, has been discovered in a cohort of 34 individuals with biallelic variants in von Willebrand factor A domain-containing 1 (VWA1). This study further delineates the disease characteristics in a cohort of 20 individuals diagnosed through genome or exome sequencing, incorporating neurophysiological, laboratory and imaging data, along with data from previously reported cases across three different studies. Newly reported clinical features include hypermobility/hyperlaxity, axial weakness, dysmorphic signs, asymmetric presentation, dystonic features and, notably, upper motor neuron signs. Foot drop, foot deformities and distal leg weakness followed by early proximal leg weakness are confirmed to be initial manifestations. Additionally, this study identified 11 novel VWA1 variants, reaffirming the 10 bp insertion-induced p.Gly25ArgfsTer74 as the most prevalent disease-causing allele, with a carrier frequency of ∼1 in 441 in the UK and Western European population. Importantly, VWA1-related pathology may mimic various neuromuscular conditions, advocating for its inclusion in diverse gene panels spanning hereditary neuropathies to muscular dystrophies. The study highlights the potential of lower quality control filters in exome analysis to enhance diagnostic yield of VWA1 disease that may account for up to 1% of unexplained hereditary neuropathies.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.000
metaresearch head score (Gemma)0.000
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: none
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.691
Threshold uncertainty score0.446

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0000.000
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.000
Bibliometrics0.0000.001
Science and technology studies0.0000.000
Scholarly communication0.0000.000
Open science0.0000.000
Research integrity0.0000.000
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.017
GPT teacher head0.322
Teacher spread0.304 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one teacher head, not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designObservational
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations6
Published2024
Admission routes1
Has abstractyes

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