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Record W4404326182 · doi:10.1002/alz.14312

Gaps in biomedical research in frontotemporal dementia: A call for diversity and disparities focused research

2024· review· en· W4404326182 on OpenAlexaff
Karen Nuytemans, Sanne Franzen, Iris Broce, Paulo Caramelli, Ratnavalli Ellajosyula, Elizabeth Finger, Veer Bala Gupta, Vivek Gupta, Ignacio Illán‐Gala, Samantha M. Loi, Darby Morhardt, Yolande A.L. Pijnenburg, Katya Rascovsky, Monique Williams, Jennifer S. Yokoyama, Juliana Acosta‐Uribe, Rufus Akinyemi, Suvarna Alladi, Biniyam A. Ayele, Yavuz Ayhan, Renelle Bourdage, Sheila Castro‐Suárez, Leonardo Cruz de Souza, Penny A. Dacks, Sterre C.M. de Boer, Jessica de Leon, Shana Dodge, Stephanie M. Grasso, Nupur Ghoshal, Vidyulata Kamath, Fiona Kumfor, Jordi A. Matías‐Guiu, Pauline Narme, T. Rune Nielsen, Daniel Okhuevbie, Stefanie Danielle Piña‐Escudero, Ramiro Ruiz‐Garcia, Brigid Ryan, Marta Scarioni, Andrea Slachevsky, Aida Suárez‐González, Boon Lead Tee, Elena Tsoy, Hülya Ulugut, Chiadi U. Onyike, Ganesh M. Babulal

Bibliographic record

VenueAlzheimer s & Dementia · 2024
Typereview
Languageen
FieldMedicine
TopicDementia and Cognitive Impairment Research
Canadian institutionsParkwood InstituteWestern University
FundersFondo de Financiamiento de Centros de Investigación en Áreas PrioritariasCenter for Advanced Research in DryingNational Health and Medical Research CouncilMedical Research CouncilNational Institute of Neurological Disorders and StrokeVelux StiftungNational Institute for Health and Care ResearchNational Institutes of HealthRainwater Charitable FoundationInstituto de Salud Carlos IIIZonMwGlobal Brain Health InstituteNational Institute on Deafness and Other Communication DisordersBrightFocus FoundationAssociation for Frontotemporal DegenerationNational Institute on AgingAlzheimer's AssociationAgencia Nacional de Investigación y DesarrolloU.S. Department of Defense
KeywordsFrontotemporal dementiaPrimary progressive aphasiaGlobeDementiaPerspective (graphical)Translational researchDiversity (politics)PsychologyMedical researchEpidemiologyGerontologyPsychiatryMedicineNeurosciencePolitical scienceDiseasePathology

Abstract

fetched live from OpenAlex

Frontotemporal dementia (FTD) is one of the leading causes of young-onset dementia before age 65, typically manifesting as abnormal behavior (in behavioral variant FTD) or language impairment (in primary progressive aphasia). Although FTD affects all populations across the globe, knowledge regarding the pathophysiology and genetics derives primarily from studies conducted in North America and Western Europe. Globally, biomedical research for FTD is hindered by variable access to diagnosis, discussed in this group's earlier article, and by reduced access to expertise, funding, and infrastructure. This perspective paper was produced by two professional interest areas of the Alzheimer's Association International Society to Advance Alzheimer's Research and Treatment (ISTAART) and discusses the field's current status on the cross-cultural aspects of basic and translational research in FTD (including that focused on epidemiology, genetics, biomarkers, and treatment). It subsequently provides a summary of gaps and needs to address the disparities and advance global FTD biomedical research.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.027
metaresearch head score (Gemma)0.029
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesMetaresearch
Consensus categoriesnone
DomainCandidate signal: Methods · Consensus signal: none
Study designCandidate signal: Not applicable · Consensus signal: none
GenreCandidate signal: Review · Consensus signal: Review
Teacher disagreement score0.973
Threshold uncertainty score0.144

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.0270.029
Meta-epidemiology (narrow)0.0010.001
Meta-epidemiology (broad)0.0040.003
Bibliometrics0.0070.007
Science and technology studies0.0010.003
Scholarly communication0.0050.011
Open science0.0020.005
Research integrity0.0070.008
Insufficient payload (model declined to judge)0.0060.001

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.240
GPT teacher head0.465
Teacher spread0.225 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.

Study designNot applicable
DomainMethods
GenreReview

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations16
Published2024
Admission routes1
Has abstractyes

Explore more

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