Assessment of quality of life in people living with hemophilia: A case study of Yaoundé Hemophilia Treatment Centre, Cameroon
Bibliographic record
Abstract
Introduction: Hemophilia is a sex-linked bleeding disorder resulting from deficiencies in coagulation factors, predominantly affecting individuals in developing countries. This study aims to assess the quality of life (QoL) of people living with hemophilia (PLWH) at the Yaoundé Hemophilia Treatment Centre (HTC), as no prior studies have been conducted in Cameroon. Methodology: A descriptive cross-sectional study was conducted from January 2022 to May 2022. We recruited 43 male patients with confirmed hemophilia, utilizing the EQ-5D-5L and EQ-5D-Y questionnaires to evaluate QoL. Data were analyzed using R software, with statistical significance set at p <0.05. Results: The mean age of participants was 17.3 years. Hemophilia A was prevalent in 88.4% of cases, with a mean age at diagnosis of 4.9 years. Most patients (67.4%) received on-demand treatment, and the primary complaint was joint pain. The overall EQ-5D utility score was 0.72, indicating moderate QoL, with VAS scores of 67.6 for both adults and children. Conclusion: The QoL of PLWH at the Yaoundé HTC is moderate according to the Blom cut-off scale.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.001 | 0.002 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.001 | 0.001 |
| Science and technology studies | 0.002 | 0.001 |
| Scholarly communication | 0.001 | 0.001 |
| Open science | 0.000 | 0.001 |
| Research integrity | 0.001 | 0.001 |
| Insufficient payload (model declined to judge) | 0.003 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".