Feasibility and Acceptability of Using an Electronic Patient-Reported Outcome Measure via a Patient Portal in HIV care
Why this work is in the frame
A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.
Bibliographic record
Abstract
<h3>Context:</h3> Adherence to antiretrovirals (ART) is essential for people with HIV (PWH), but many face barriers. The I-Score is a new electronic patient-reported outcome measure (ePROM) of ART adherence barriers to be used in HIV care. <h3>Objective:</h3> To assess the feasibility and acceptability of administering the I-Score on a patient portal. <h3>Study Design Analysis:</h3> 6-month one-arm implementation pilot study. <h3>Setting:</h3> A large hospital-based clinic in Montreal, Canada. <h3>Population:</h3> PWH on ART, speaking French or English, owning a smartphone, willing to use the patient portal, reporting adherence issues. <h3>Intervention/Instrument:</h3> Patients visited their HIV physician at Time 1 (T1), 3 months (T2), and 6 months (T3). Before visits, they completed the I-Score. After visits, they completed a survey on sociodemographic characteristics (T1), and feasibility and acceptability of the I-Score. <h3>Outcome Measures:</h3> Feasibility was assessed with consent and retention rates; frequency of technological problems; and the 4-item Feasibility of Intervention Measure (FIM). Acceptability was evaluated with the adapted 6-item Acceptability E-scale for web-based PROMs (AES); and the 4-item Acceptability of Intervention Measure (AIM). We provide descriptive statistics. <h3>Results:</h3> Out of 34 PWH with identified adherence issues, 32/34 (94%) consented. Average age was 48 years (standard deviation (SD)=15), 12/32 (38%) were women, 19/32 (59%), migrants, and 10/32 (31%) lived below the poverty line. Overall, 26/32 (81%) completed the study, for a total of 78 visits; 4 were lost-to-follow-up and 2 withdrew due to difficulties with technology. During T1, T2, and T3, there were 12/26 (46%), 17/26 (65%), and 16/26 (62%) participants, respectively, reporting no technological problem. Problems met included needing to: remind patients to complete the I-Score before medical visit (15 visits); re-initialize passwords (8); resolve connectivity issues (2); and re-install the patient portal (2). Physicians could not access I-Score results at 4 visits; 10 visits were postponed due to difficulties. Average scores on FIM increased from 17/20 (T1;SD=5), to 18/20 (T2;2), to 19/20 (T3;2). Average AES increased from 24/30 (SD=5), to 26/30 (3), to 27/30 (3). Average AIM scores passed from 16/20 (5), to 18/20 (2), to 17/20 (3). <h3>Conclusions:</h3> The feasibility and acceptability of using a patient portal to administer the I-Score ePROM was high for vulnerable PWH, but use was challenged by patient literacy and technology.
Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.
Full frame distilled prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.
Codex and Gemma teacher scores by category
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.002 | 0.000 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.000 | 0.000 |
| Science and technology studies | 0.000 | 0.000 |
| Scholarly communication | 0.000 | 0.000 |
| Open science | 0.000 | 0.000 |
| Research integrity | 0.000 | 0.000 |
| Insufficient payload (model declined to judge) | 0.000 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it