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Scoping literature review to identify candidate domains for the OMERACT Systemic Lupus Erythematosus core outcome set

2025· article· en· W4408003169 on OpenAlexafffund
Wils Nielsen, Fadi Kharouf, Carolina Muñoz‐Grajales, Aarabi Thayaparan, Melanie Anderson, Vibeke Strand, Lee S. Simon, Dennisse Bonilla, Eric F. Morand, Julian Thumboo, Martin Aringer, Marta Mosca, Ian N Bruce, Elektra J. Papadopoulos, Karina D. Torralba, Laura Patricia Whitall-Garcia, Cheryl F. Rosen, Ioannis Parodis, Alfred H.J. Kim, Maya Desai, Yvonne Enman, Beverley Shea, Daniel J. Wallace, Yashaar Chaichian, Sandra Navarra, Cynthia Aranow, Meggan Mackay, Kimberly Trotter, Oshrat E Tayer-Shifman, Alí Duarte‐García, Lai‐Shan Tam, Manuel F. Ugarte‐Gil, Guillermo Pons‐Estel, John A. Reynolds, Mandana Nikpour, Alberta Hoi, Juanita Romero‐Díaz, Amita Aggarwal, Danaë A Papachristos, Chi Chiu Mok, Keishi Fujio, Rosalind Ramsey‐Goldman, Alexandra Legge, Laurent Arnaud, Irene E. M. Bultink, Stephanie Finzel, Reinhard Voll, Guillermo Ruiz‐Irastorza, Luís Inês, Simone Appenzeller, Chrisanna Dobrowolski, Ann E. Clarke, Diane L. Kamen, Michelle Barraclough, Chiara Tani, José A. Gómez‐Puerta, Victoria P. Werth, Patti Katz, Anca Askanase, Kathleen Bingham, Dafna D. Gladman, Sindhu R. Johnson, Aaron M. Drucker, Behdin Nowrouzi‐Kia, Zahi Touma

Bibliographic record

VenueSeminars in Arthritis and Rheumatism · 2025
Typearticle
Languageen
FieldMedicine
TopicSystemic Lupus Erythematosus Research
Canadian institutionsWomen's College HospitalCentre for Addiction and Mental HealthUniversity of CalgaryDalhousie UniversityUniversity Health NetworkUniversity of TorontoResearch CanadaToronto Western HospitalOttawa HospitalOntario College of Art and Design
FundersUniversity Health Network FoundationLupus Research AllianceChinese Diabetes SocietyUniversity of TorontoCanadian Arthritis NetworkArthritis Society
KeywordsMedicineCore (optical fiber)Outcome (game theory)Set (abstract data type)Mathematical economics

Abstract

fetched live from OpenAlex

OBJECTIVE: To identify candidate Systemic Lupus Erythematosus (SLE) domains from the literature for consideration towards the development of the SLE Core Outcome Set. METHODS: This was a comprehensive scoping literature review of SLE clinical trials and systematic reviews published since 2010. Studies were identified from 5 databases and were screened for eligibility. Candidate domains were extracted from the included studies. Candidate domains were winnowed and binned by the Outcome Measures in Rheumatology (OMERACT) SLE Advisory Group. RESULTS: Of the 4063 studies identified, 507 met inclusion criteria and proceeded to data extraction. Multiple domains and items were extracted, which winnowing and binning reduced to 25 candidate domains. CONCLUSION: The 25 candidate domains cover the important aspects of SLE and the 4 core areas of disease impact according to OMERACT framework. The 25 candidate domains constitute a feasible and manageable number of domains to proceed with to the core domain consensus stage that covers the wide range of impact of SLE. The candidate domains will be supplemented by ongoing qualitative research with patients living with SLE to identify additional domains before proceeding to the consensus stage.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.087
metaresearch head score (Gemma)0.277
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesMetaresearch
Consensus categoriesnone
DomainCandidate signal: Methods · Consensus signal: none
Study designCandidate signal: Systematic review · Consensus signal: Systematic review
GenreCandidate signal: Review · Consensus signal: Review
Teacher disagreement score0.913
Threshold uncertainty score0.459

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.0870.277
Meta-epidemiology (narrow)0.0020.002
Meta-epidemiology (broad)0.0090.011
Bibliometrics0.0530.034
Science and technology studies0.0030.002
Scholarly communication0.0070.007
Open science0.0040.007
Research integrity0.0040.002
Insufficient payload (model declined to judge)0.0130.001

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.034
GPT teacher head0.385
Teacher spread0.352 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.

Study designSystematic review
DomainMethods
GenreReview

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations2
Published2025
Admission routes2
Has abstractyes

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