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Record W4410023158 · doi:10.1016/j.jcpo.2025.100589

Tailoring information for adults over 50 living with cancer in the age of social media: A systematic review

2025· review· en· W4410023158 on OpenAlexaboutno aff
Rosa Goncalves, Wasek Faisal, Tonya Stebbins, Irene Blackberry

Bibliographic record

VenueJournal of Cancer Policy · 2025
Typereview
Languageen
FieldHealth Professions
TopicHealth Literacy and Information Accessibility
Canadian institutionsnot available
FundersLa Trobe UniversityVictorian Cancer Agency
KeywordsSocial mediaGerontologyCancerPsychologyMedicineComputer scienceWorld Wide Web

Abstract

fetched live from OpenAlex

BACKGROUND: Cancer often requires patients to make swift, informed, treatment decisions. Despite their engagement with healthcare providers and digital resources, cancer patients over 50 often experience high levels of unmet information needs during these critical times. However, there is a lack of evidence-based information on their supportive-care information needs. OBJECTIVE: To examine cancer patients' (aged 50 +) information and health literacy needs and their motivations for using social media (i.e Twitter/X, Facebook, YouTube and Instagram) during decision-making. METHODS: A systematic literature review, following the PRISMA guidelines, was conducted using electronic databases (Scopus, Web of Science and PubMed/MEDLINE) and grey literature. All original articles published from January 2002 to October 2023 were extracted and analysed within COVIDENCE and NVIVO14 for themes following narrative and tabular analysis. Risk of bias was assessed using the Newcastle-Ottawa Quality Assessment scale. RESULTS: Of 761 articles identified, six were included. Patients' health literacy was determined to be moderate to low. At decision-making points, cancer patients over 50 needed personalised, supportive and disease-related information. They preferred holistically tailored information and were satisfied with how their doctors met their needs. Complimentary therapies and dietary recommendations were well received by patients of Chinese, Vietnamese, and Australian backgrounds. Patients over 50 accessed social media throughout their cancer. Although useful for obtaining support and information, social media raised patients' concern around misinformation. CONCLUSION: Our findings highlight the importance of meeting the information needs of cancer patients over 50 and incorporating a holistic approach to information delivery. Social media sites targeting consumers can be useful tools for healthcare institutions to supply accurate, user-friendly information. TRIAL REGISTRATION: PROSPERO registration number - CRD42022358710.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.008
metaresearch head score (Gemma)0.043
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Systematic review · Consensus signal: Systematic review
GenreCandidate signal: Review · Consensus signal: Review
Teacher disagreement score0.010
Threshold uncertainty score0.042

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.0080.043
Meta-epidemiology (narrow)0.0010.001
Meta-epidemiology (broad)0.0060.005
Bibliometrics0.0100.010
Science and technology studies0.0010.001
Scholarly communication0.0030.004
Open science0.0010.002
Research integrity0.0020.001
Insufficient payload (model declined to judge)0.0040.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.067
GPT teacher head0.517
Teacher spread0.451 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designSystematic review
Domainnot available
GenreReview

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations1
Published2025
Admission routes1
Has abstractyes

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