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COMPARING PERFORMANCE-BASED MEASURES AND SELF-REPORTED QUESTIONNAIRES FOR ASSESSMENT OF EXECUTIVE FUNCTION FOR YOUTH WITH CHILDHOOD-ONSET SYSTEMIC LUPUS ERYTHEMATOSUS

2025· article· en· W4410513162 on OpenAlexaffvenue
Tala El Tal, Jida Jaffan, Justine Ledochowski, Louise Boulard, Oscar Mwizerwa, B Zapparoli, Sarah I. Mossad, Lawrence Cheng Kiat Ng, Asha Jeyanathan, Adrienne L. Davis, Linda T. Hiraki, Deborah L. Levy, Ashley Danguecan, Andrea Knight

Bibliographic record

VenueThe Journal of Rheumatology · 2025
Typearticle
Languageen
FieldMedicine
TopicSystemic Lupus Erythematosus Research
Canadian institutionsHospital for Sick ChildrenChildren's Hospital of Eastern Ontario
Fundersnot available
KeywordsMedicineLupus erythematosusSystemic lupusImmunologyInternal medicineDiseaseAntibody

Abstract

fetched live from OpenAlex

PV162 / #428 Poster Topic: AS18 - Pediatric SLE Background/Purpose Executive dysfunction is common in childhood-onset systemic lupus erythematosus (cSLE). Comprehensive neuropsychological assessments use both performance-based measures and standardized questionnaires, capturing different cognitive constructs. However, comprehensive assessments are time-consuming, resource-intensive, and often inaccessible. Standardized questionnaires measuring self-rated daily executive function (EF), are brief and easy to administer, with potential clinical utility to identify patients needing comprehensive assessment. The study aimed to examine associations between performance-based measures and self-rating of daily EF in youth with cSLE. Methods This cross-sectional study analyzed prospectively collected data from cSLE patients (meeting ACR 1997 or SLICC classification criteria) aged 11-17 years recruited from an outpatient Lupus Clinic from January 2020–December 2023, and age and sex-matched healthy controls. Participants completed the Behaviour Rating Inventory of Executive Function 2nd Edition Self-Report Form (BRIEF-2-SR) assessing daily EF measured by the General Executive Composite (GEC), Behavior Regulation Index (BRI), Cognitive Regulation Index (CRI), and Emotion Regulation Index (ERI). The Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT), a performance-based measure, assessed information processing speed (Color Naming, Word Reading), cognitive inhibition and flexibility (Inhibition, Inhibition/Switching). Correlations were calculated between the BRIEF-2-SR summary scores (GEC, BRI, CRI, and ERI) and scaled scores for performance in the 4 tasks of the D-KEFS CWIT. Mann-Whitney U tests were used to examine group differences in scores. Results There was a total of 58 cSLE participants (84% female; mean age=15.3y ± SD 1.7) and 47 controls (83% female; mean age=14.9y ± SD 1.9) (Table 1). For cSLE participants, worse performance-based scores for cognitive inhibition and flexibility showed statistically significantly correlations with worse self-rated daily EF scores for the GEC, BRI, and ERI (Figure 1). For controls, worse scores for cognitive inhibition and flexibility correlated with worse self-rated daily EF scores for GEC and CRI (Figure 1). Performance-based processing speed scores were not significantly associated with the BRIEF-2 scores in either group. No significant differences were found between cSLE and controls across BRIEF-2-SR indices. On the D-KEFS, cSLE participants displayed significantly poorer performance on Color Naming (U = 1027, p = 0.022), Inhibition (U = 1027, p = 0.021), and Inhibition/Switching (U = 1049, p = 0.030) compared to controls. Table 1. Demographics and Disease Characteristics Figure 1: Spearman Rho correlation matrices depicting the associations between BRIEF-2-SR (higher scores indicating worse executive function) and D-KEFS (lower scores indicating worse executive function) measures for childhood-onset systemic lupus erythematosus (cSLE) participants and controls. * Denotes significance (p < 0.05) Conclusions Youth with cSLE in this cohort had worse performance-based EF measures compared to controls. Performance-based scores for cognitive inhibition and flexibility correlated with self-rated daily EF scores in both groups, but more consistently across indices in the cSLE group. Further study is needed to determine the utility of questionnaires for self-rated daily EF as efficient screening tools to identify cSLE patients needing comprehensive neuropsychological assessment.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.003
metaresearch head score (Gemma)0.007
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: Observational
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.003
Threshold uncertainty score0.017

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.0030.007
Meta-epidemiology (narrow)0.0010.000
Meta-epidemiology (broad)0.0000.001
Bibliometrics0.0010.001
Science and technology studies0.0000.000
Scholarly communication0.0010.001
Open science0.0000.001
Research integrity0.0010.001
Insufficient payload (model declined to judge)0.0010.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.034
GPT teacher head0.300
Teacher spread0.266 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designObservational
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

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Citations0
Published2025
Admission routes2
Has abstractyes

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