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Record W4411089976 · doi:10.1016/j.ajo.2025.05.044

Natural History of Autosomal Recessive IMPG2-Associated Retinal Dystrophy

2025· article· en· W4411089976 on OpenAlexaff
Michalis Georgiou, Kaoru Fujinami, Yu Fujinami‐Yokokawa, Fadi Nasser, Michael J. Gale, Carmen Ayuso, Omar A. Mahroo, Nikolas Pontikos, Zaina Bouzia, Belén Jimenez‐Rolando, Ester Carreño, Rigmor C. Baraas, Josephine Prener Holtan, Ragnheiður Bragadóttir, Alberta A. H. J. Thiadens, Monika Grudzinska Pechhacker, Ajoy Vincent, Élise Héon, Alaa AlTalbishi, Ramiro S. Maldonado, John Neidhardt, Bohdan Kousal, Mette Bertelsen, Michael Larsen, Mark E. Pennesi, Susanne Kohl, Bernd Wissinger, E. Zrenner, Andrew R Webster, Michel Michaelides

Bibliographic record

VenueAmerican Journal of Ophthalmology · 2025
Typearticle
Languageen
FieldBiochemistry, Genetics and Molecular Biology
TopicRetinal Development and Disorders
Canadian institutionsSickKids FoundationHospital for Sick Children
FundersMoorfields Eye Hospital NHS Foundation TrustAlexander S. Onassis Public Benefit FoundationMinisterstvo Zdravotnictví Ceské RepublikyNIHR Biomedical Research Centre, Royal Marsden NHS Foundation Trust/Institute of Cancer ResearchA.G. Leventis FoundationWellcome TrustFoundation Fighting Blindness
KeywordsRetinalNatural historyDystrophyMedicineOphthalmologyGeneticsOptometryBiologyInternal medicine

Abstract

fetched live from OpenAlex

PURPOSE: To describe the natural history of autosomal recessive IMPG2-associated retinal dystrophy. DESIGN: Multicenter international retrospective case series. METHODS: Review of clinical notes, retinal imaging including fundus autofluorescence (FAF) and optical coherence tomography (OCT), and molecular genetic testing, of sixty patients with molecularly confirmed IMPG2-associated retinal dystrophy from 14 tertiary eye centers. Qualitative OCT and FAF imaging analysis. RESULTS: In total, 60 patients from 52 pedigrees with likely disease-causing variants in IMPG2 from 14 tertiary referral centers in 11 countries were ascertained for phenotyping. Twenty-two patients were females (36.7%). Of those with documented age of disease onset, 23% had "late onset" (>18 years old [yo]) with a mean age of onset of 34.3 yo, and 77% had "early onset" disease (<18 yo) with a mean age of onset of 10.8 yo. Mean best-corrected visual acuity (BCVA) was 0.55 LogMAR at a mean age of 33 yo. Forty-eight percent of the patients presented with nyctalopia and 38% presented with decreased BCVA. Eighty-eight percent of the patients were myopic. Foveal involvement with atrophic changes was a common finding on OCT and FAF. Fifty-three variants were identified: 13 missense (25%), 12 nonsense (23%), 11 splicing variants (21%), 16 frameshifts (30%), and one large deletion (2%). Twenty-one (40%) of the variants were not previously clinically characterized. CONCLUSION: Autosomal recessive IMPG2-retinal dystrophy is typically an early onset retinal dystrophy associated with poor visual acuity. Younger patients are more likely to benefit from intervention in future trials due to early macular involvement in most patients.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.000
metaresearch head score (Gemma)0.000
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: none
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.637
Threshold uncertainty score0.510

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0000.000
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.000
Bibliometrics0.0000.000
Science and technology studies0.0000.001
Scholarly communication0.0000.000
Open science0.0000.000
Research integrity0.0000.000
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.006
GPT teacher head0.254
Teacher spread0.248 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one teacher head, not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designObservational
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations1
Published2025
Admission routes1
Has abstractyes

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