Preliminary Results of a Pilot Randomized Controlled Trial: Feasibility and Acceptability of a Virtual Adolescent Self-Management Program for Juvenile Idiopathic Arthritis
Bibliographic record
Abstract
Objectives A needs assessment of adolescents with juvenile idiopathic arthritis (JIA) have revealed significant gaps in addressing adolescent needs during the transition to adult care. We conducted a preliminary investigation of the Virtual Adolescent Self-Management Program (VISTA) for adolescents with JIA in Canada. The aim of this project was to evaluate and improve the feasibility and acceptability of the program for future implementation.[1] Methods This is a multicenter study using a randomized controlled trial (RCT) design to assess the feasibility and acceptability of a self-management program for adolescents with JIA. The target is to recruit 100 subjects in total. One of the 5 Canadian sites recruited and enrolled patients into 1 of 2 groups: (a) a remote intervention versus (b) a wait-list control group. Nine individuals were recruited and randomized, with 5 assigned to the intervention group and 4 to the control group. Participants in the intervention group attended 4 60-90 minutes education sessions (overview and diagnosis of JIA, daily living and exercise, coping strategies, and treatment and lifestyle management) over 8 weeks via Zoom. Both groups completed questionnaires at baseline (T0) and after the intervention was completed (T1). Following the program’s completion, participants in the intervention group were invited to take part in an optional semi-structured interview to provide feedback. Results All participants completed the baseline and post-intervention questionnaires. Participants in the intervention group attended all 4 sessions of the program and 4 out of 5 participated in the optional interview. Two out of 4 participants in the control group indicated interest in completing the intervention if given the opportunity. All intervention participants indicated that they would attend the program again and think other teens would be interested. They commented positively on the information provided and the ability to connect with other teens with JIA. However, there was consensus among participants that the sessions felt too long and mixed responses regarding whether the program was sufficiently interactive. Conclusion The preliminary investigation into the virtual self-management program for adolescents with juvenile idiopathic arthritis demonstrated both feasibility and positive reception. While feedback indicated that session length could be reduced and there were differing views on the program’s interactivity, the overall response was favorable. These insights will inform future program adaptations to better meet the needs of adolescents with JIA, ensuring the program is accessible and engaging. The recruitment is ongoing at all sites to reach target of 100 participants in total. [1.] Chomistek K. ACR Open Rheumatol 2022;4(2):142-51.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.015 | 0.022 |
| Meta-epidemiology (narrow) | 0.001 | 0.001 |
| Meta-epidemiology (broad) | 0.002 | 0.002 |
| Bibliometrics | 0.001 | 0.001 |
| Science and technology studies | 0.001 | 0.002 |
| Scholarly communication | 0.001 | 0.001 |
| Open science | 0.002 | 0.001 |
| Research integrity | 0.002 | 0.002 |
| Insufficient payload (model declined to judge) | 0.007 | 0.001 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".