Usability and Acceptability of the French Version of the “JIA Option Map” (“Carte d’Options en AJI”): A Web-Based Patient Decision Aid for Young People with Juvenile Idiopathic Arthritis
Bibliographic record
Abstract
Objectives Young people with juvenile idiopathic arthritis (JIA) often experience pain which has an important impact on their daily life. However, pain is often underestimated by health care providers (HCPs) and is not sufficiently discussed in clinical consultations. Our team developed the JIA Option Map, a web-based patient decision aid, which has demonstrated good usability, and acceptability. In the current study, we evaluated the usability and acceptability of the French version of the JIA Option Map (“Carte d’options en AJI”). Methods We conducted usability and acceptability testing using virtual semi-structured interviews with a total of 3 adolescents 13-18 years old with JIA, 3 young adults 19-30 years old with JIA, as well as 4 parents of youths with JIA. We recruited participants from a pediatric rheumatology clinic and through patient organizations. Participants navigated the web application using the think-aloud method, and answered questions about ease of use, content, format, potential use, and perceived effectiveness. We videotaped interviews and transcribed and analyzed verbatim using simple descriptive content analysis. Results All participants felt that the app was easy to navigate, and the format was user-friendly. All participants felt the content was appropriate and generally easy to understand. They mentioned they would use this app frequently, with the help of recently added reminders. Participants felt the app would help them learn about a range of pain management strategies and help them engage in decision-making with HCPs. Participants liked the wide range of options with a color-coded legend, the evidence-based summaries presenting their probabilities of benefits and harm, the links to online resources and tips to help follow their plan, as well as the dashboard which shows pain over time. Suggestions for improvement included clarifying some of the instructions and icons, adding pain management strategies and links to additional resources and videos and adding instructions to help monitor their pain. Conclusion The French version of the JIA Option Map has good usability and acceptability and has the potential to facilitate decision-making for pain management options among French-speaking young people with JIA and their families and HCPs in the clinic. Changes have been made to improve the content and format of the app. Work is underway to test the effectiveness of the application over time.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.008 | 0.019 |
| Meta-epidemiology (narrow) | 0.001 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.001 |
| Bibliometrics | 0.001 | 0.000 |
| Science and technology studies | 0.001 | 0.001 |
| Scholarly communication | 0.001 | 0.001 |
| Open science | 0.000 | 0.001 |
| Research integrity | 0.001 | 0.000 |
| Insufficient payload (model declined to judge) | 0.003 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".