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Record W4412072012 · doi:10.1177/13524585251349125

Four years on: Pregnancy and birth outcomes reported in the MSBase pregnancy, neonatal outcomes, and Women’s Health Registry (2020–2024)

2025· article· en· W4412072012 on OpenAlexaff
Vilija Jokubaitis, Raed Alroughani, Ayşe Altıntaş, Sara Eichau, Stella Hughes, Barbara Willekens, Dana Horáková, Eva Havrdová, Serkan Özakbaş, Cavit Boz, Mario Habek, Tomáš Kalinčík, Izanne Roos, Masoud Etemadifar, Marek Peterka, Jeannette Lechner‐Scott, José Meca-Lallana, Zuzana Rous, Jana Houskova, Alexandre Prat, Marc Girard, Radek Ampapa, Katherine Buzzard, Olga Skibina, Nevin John, Allan G. Kermode, Marzena J. Fabis‐Pedrini, Matteo Foschi, Andrea Surcinelli, Yolanda Blanco, Seyed Mohammad Baghbanian, Oliver Gerlach, Richard Macdonell, Zbyšek Pavelek, Pavel Štourač, Pamela McCombe, Guy Laureys, Helmut Butzkueven, Anneke van der Walt, Orla Gray, Marta Vachová, Jana Libertínová, Michael Barnett, Pavel Hradílek, Pierre Duquette, Alena Martinková, Eva Recmanová, Julie Prévost, Louise Rath, Guillermo Izquierdo, Abdorreza Naser Moghadasi, Mark Slee, Davide Maimone, Jiwon Oh, Murat Terzi, Pierre Grammond, José Luis Sánchez-Menoyo, Emanuele D’Amico, Beatriz Romero Ferrando, Mehmet Fatih Yetkin, Bassem Yamout, Ivana Štětkářová, Cristina Ramo‐Tello, Koen de Gans, Riadh Gouider, Saloua Mrabet, Abdullah Al‐Asmi, Rana Karabudak, Aysun Soysal, Samia J. Khoury, Emmanuelle Lapointe, Simón Cárdenas‐Robledo, Nevin Shalaby, Daniele Spitaleri, Joana Guimarães, Gregor Brecl Jakob, Suzanne Hodgkinson, Mohammad Baghbanian, Recai Türkoğlu, Vincent Van Pesch, François Grand’Maison, Elisabetta Cartechini, Enrique Gómez‐Figueroa, Jennifer Massey, Chiyoko Nohara, Kenzo Sakurai, Deborah Mason, Talal Al‐Harbi, Tamara Castillo‐Triviño, Fumitaka Shimizu, Bruce Taylor, Todd A. Hardy, Steve Vucic, Stephen Reddel, Sudarshini Ramanathan, D. Decoo, Maria Cecília Aragon de Vecino, Yuri Nakamura, Norio Chihara, Eli Skromne, О.О. Kopchak

Bibliographic record

VenueMultiple Sclerosis Journal · 2025
Typearticle
Languageen
FieldMedicine
TopicMultiple Sclerosis Research Studies
Canadian institutionsCentre intégré de santé et de services sociaux de Chaudière-AppalachesCegep de Saint JeromeCentre Hospitalier Universitaire de SherbrookeSt. Michael's HospitalUniversité de Montréal
FundersCliniques Universitaires Saint-LucUCB PharmaSanofi GenzymeTrish Multiple Sclerosis Research FoundationMedDay PharmaceuticalsCinnaGenCilagIngham Institute for Applied Medical ResearchMitsubishi Tanabe Pharma CorporationSultan Qaboos UniversitySanofiMultiple Sclerosis International FederationRazi UniversityEisaiMonash UniversityH. Lundbeck A/SAlexion PharmaceuticalsUniversity of New South WalesMultiple Sclerosis AustraliaMedical Research CouncilNeuraxpharmTeva Pharmaceutical IndustriesCelgeneBiogenFaculty of Medicine and Health, University of SydneyCairo UniversityYeditepe ÜniversitesiEuropean CommissionWorld Health OrganizationBristol-Myers SquibbEli Lilly and CompanyNational Health and Medical Research CouncilAstraZenecaAmerican University of BeirutAmgen
KeywordsMedicinePregnancyNeuromyelitis opticaGestationObstetricsMultiple sclerosisPediatricsImmunology

Abstract

fetched live from OpenAlex

BACKGROUND: Family planning is an important aspect of multiple sclerosis (MS), and neuromyelitis optica spectrum disorder (NMOSD) management. Knowledge gaps remain, including optimal perinatal management strategies, and fetal risks associated with disease-modifying therapy (DMT) exposure. OBJECTIVE: To describe perinatal DMT use, together with pregnancy and neonatal outcomes prospectively recorded in the International MSBase Pregnancy and Women's Health Registry. METHODS: We report summary statistics for data collected between May 2020 and August 2024. RESULTS: A total of 1887 relapsing-remitting MS (RRMS), 12 primary-progressive MS (PPMS), 2 radiologically isolated syndrome (RIS) and 21 NMOSD completed pregnancies were recorded, including 1644 (85.5%) live births, 208 (10.8%) miscarriages, and 6 (0.3%) neonatal deaths. Most women had unassisted (53.8%) or assisted (7.4%) vaginal births. Seventy five percent of pregnancies had DMT exposures within 6 months preconception; 19% of NMOSD, and 62% of MS pregnancies were DMT-exposed during gestation; 18.1% of pregnancies reported in-pregnancy monoclonal antibody DMT exposure. No overt safety signals were seen. CONCLUSION: This first report from the newly launched MSBase pregnancy registry, establishes an increasing number of pregnancies being conceived on monoclonal antibody therapies. Although no safety signals were observed, it is important to continue monitoring for safety signals in real-world databases as the use of highly effective therapies continues to increase perinatally.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.002
metaresearch head score (Gemma)0.003
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesMeta-epidemiology (narrow)
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: Observational
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.129
Threshold uncertainty score1.000

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0020.003
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0010.000
Bibliometrics0.0010.001
Science and technology studies0.0010.000
Scholarly communication0.0000.000
Open science0.0000.000
Research integrity0.0000.001
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.081
GPT teacher head0.331
Teacher spread0.251 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one teacher head, not a consensus.

Study designObservational
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations0
Published2025
Admission routes1
Has abstractyes

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