Upper limb participation after brachial plexus birth injury from childhood to young adulthood: A qualitative study
Bibliographic record
Abstract
There is emerging evidence from patient-reported questionnaires that participation restrictions related to employment, parenting, and leisure pursuits emerge in adulthood after a brachial plexus birth injury (BPBI). However, little is known about the lived experiences of young adults with BPBI and their participation during this transitional phase. This Interpretive Description qualitative study was informed by the self-determination theory to guide our perspective of how transformations in the areas of autonomy, competency, and relatedness may influence participation throughout the lifespan. Semi-structured interviews with nine young adults between 19 and 34 years of age with BPBI’s were conducted, transcribed, and analyzed using thematic analysis to explore their lifelong participation. There were three main themes that arose during the analysis of these interviews: Navigating everyday life, Navigating uncertainties, and Navigating BPBI identity. Within navigating everyday life participants shared narratives of how opportunities in childhood helped them figure out how to adapt to their BPBI which led to habitual adaptations in adulthood; self-awareness and self-advocacy skills evolved over time. Common experiences of navigating uncertainties during major life transitions (e.g., parenting, post-secondary studies) was expressed as a conscious process of relearning and reintegrating the impacts of BPBI. During transition to adulthood, the lived experiences of the visibility and invisibility of disability emerged as a central aspect of BPBI identity . These narratives from the lifelong participation of adults with BPBI provide important insights to inform transitional care programming of children with BPBI within pediatric hand and upper limb clinical settings.
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How this classification was reachedexpand
Full frame distilled prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.
Codex and Gemma teacher scores by category
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.000 | 0.000 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.000 | 0.000 |
| Science and technology studies | 0.000 | 0.000 |
| Scholarly communication | 0.000 | 0.000 |
| Open science | 0.000 | 0.000 |
| Research integrity | 0.000 | 0.000 |
| Insufficient payload (model declined to judge) | 0.000 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one teacher head, not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".