Decision-making in ostomy surgery: The lifeworld experiences of women with inflammatory bowel disease and the views of healthcare professionals
Bibliographic record
Abstract
This study investigates the lifeworld experiences of women who underwent ostomy surgery to manage severe symptoms of inflammatory bowel disease (IBD). IBD includes ulcerative colitis and Crohn's disease and involves chronic inflammation of tissue in the gastrointestinal tract with recurrent symptoms of diarrhea, rectal bleeding, abdominal pain, fatigue, and weight loss. Data collection involved semi-structured interviews with nine women between the ages of 19 and 30 years living with an ostomy they received at a younger age. Seven healthcare professionals who care for IBD patients with an ostomy also participated in interviews. Prior to surgery, the women reported struggling with progressive, severe and unrelenting symptoms of IBD not alleviated by pharmacotherapy that became potentially life threatening. Consequently, the women underwent ostomy surgery to create a stoma opening of the bowel that allowed stool to pass into a bag attached to the opening. Using Habermas's theory of communicative action, this paper examines how IBD altered the women's lifeworld prior to surgery and their ability to socially engage with others in day-to-day life. The paper also discusses the absence of communicative action as an aspect of the women's interactions with medical practitioners, and the strategic subsummation of their lifeworld by the voice of medicine. Additionally, the paper reports on the perspective of healthcare professionals on the care and support they provide patients who receive ostomy surgery. In conclusion, an argument is made for the benefits of a lifeworld approach in IBD care.
Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.
How this classification was reachedexpand
Full frame distilled prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.
Codex and Gemma teacher scores by category
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.001 | 0.000 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.000 | 0.000 |
| Science and technology studies | 0.001 | 0.002 |
| Scholarly communication | 0.000 | 0.000 |
| Open science | 0.000 | 0.000 |
| Research integrity | 0.000 | 0.000 |
| Insufficient payload (model declined to judge) | 0.000 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one teacher head, not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".