Navigating the “rabbit hole”: An embodied and affective account of patienthood and chronic illness
Bibliographic record
Abstract
Feminist scholars studying chronic illness have drawn on the notion of personhood to develop the concept of patienthood, highlighting the socially and culturally constructed nature of this subjectivity. To further conceptualizations of patienthood, I conducted arts-based qualitative research, asking: how do young women and gender-diverse adults living with chronic illnesses understand and experience patienthood? Multimedia collage workshops with 10 women and nonbinary people living with chronic illnesses invited participants to create “portraits of patienthood.” My analysis of the artwork continues the interdisciplinary work of conceptualizing patienthood by reading the art through critical disability scholar Margaret Price's notion of “crip spacetime.” Together, Price's theory and participant accounts illuminate the deeply relational, embodied, and affective dimensions of patienthood as shaped by the entanglement of social, material, cultural, and psychological factors. This study identifies the metaphor of the “rabbit hole” as an apt description of the complexities inherent in navigating the fluctuating nature of chronic illness amid a lack of systemic support.
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How this classification was reachedexpand
Full frame distilled prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.
Codex and Gemma teacher scores by category
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.001 | 0.000 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.000 | 0.000 |
| Science and technology studies | 0.001 | 0.000 |
| Scholarly communication | 0.000 | 0.000 |
| Open science | 0.000 | 0.000 |
| Research integrity | 0.000 | 0.001 |
| Insufficient payload (model declined to judge) | 0.000 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one teacher head, not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".