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Record W4413594184 · doi:10.1177/22143602251369279

Bullying experiences of youth with neuromuscular disorders and their well-being: A survey study

2025· article· en· W4413594184 on OpenAlexaffabout
Christina Ippolito, Marc‐Olivier Deguise, Hanns Lochmüller, Hugh J. McMillan, Laura McAdam

Bibliographic record

VenueJournal of Neuromuscular Diseases · 2025
Typearticle
Languageen
FieldPsychology
TopicBullying, Victimization, and Aggression
Canadian institutionsOttawa HospitalUniversity of TorontoCARE CanadaChildren's Hospital of Eastern OntarioUniversity of OttawaHolland Bloorview Kids Rehabilitation Hospital
Fundersnot available
KeywordsQuality of life (healthcare)DemographicsMedicinePsychological resilienceDescriptive statisticsClinical psychologyInjury preventionPoison controlPsychologyDemographyMedical emergency

Abstract

fetched live from OpenAlex

PURPOSE: Bullying is a widespread problem in Canada and throughout the world. Children and youth with chronic illnesses or physical disabilities are more likely to be targets of bullying of all kinds. However, there is a paucity of research about bullying involving youth with neuromuscular disorders. The study aimed to assess the prevalence of bullying in youth with neuromuscular disorders and how bullying rates impact their quality of life and well-being. METHODS: An online survey was administered at a single timepoint to youth with a neuromuscular disorder. The survey captured data about demographics, bullying frequency, quality of life, and emotional well-being. Descriptive statistics summarized demographic and bullying data. Spearman rank correlations measured the relationships between bullying prevalence and quality of life/well-being. RESULTS: Twenty-nine participants completed the survey (22 male; mean age = 13 years, 10.8 months (SD = 2 years, 10.8 months). Twenty-four of 29 participants (82.8%) had been bullied at some point in their life. Participants reported being bullied most frequently for their appearance and their disability. Bullying did not correlate with quality of life and well-being. CONCLUSIONS: Participants with neuromuscular disorders reported high rates of bullying without impacts on quality of life and well-being. We posit participants exhibit resilience.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.000
metaresearch head score (Gemma)0.000
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: Observational
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.038
Threshold uncertainty score0.654

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0000.000
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.000
Bibliometrics0.0000.000
Science and technology studies0.0000.000
Scholarly communication0.0000.000
Open science0.0000.000
Research integrity0.0000.000
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.014
GPT teacher head0.273
Teacher spread0.259 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one teacher head, not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designObservational
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations0
Published2025
Admission routes2
Has abstractyes

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