Perspectives on Accessing Mental Health Supports for Youth Living With Post‐Traumatic Stress Symptoms After a Solid Organ Transplant
Bibliographic record
Abstract
BACKGROUND: Many children and adolescents who undergo solid organ transplants (SOT) develop post-traumatic stress (PTS) symptoms. Despite its prevalence and strong association with long-term impairments in quality of life, PTS is often overlooked as a major co-morbidity in many transplant programs. To address this unmet need, the purpose of this study was to explore the factors that impede or facilitate awareness of PTS, access to resources, and readiness to engage with mental health services. METHODS: Separate semi-structured interviews (N = 17) were conducted with pediatric SOT recipients between the ages of 12 and 18, and a parent/caregiver. Descriptive content analysis was used to uncover emerging themes from the interviews that explored: (1) awareness and management of PTS symptoms; (2) timelines surrounding PTS symptom awareness and resource-seeking; (3) facilitators to PTS symptom awareness; (4) barriers to PTS symptom awareness; (5) information seeking; and (6) areas for improvement in the current content and availability of resources. RESULTS: Emotional and physical impacts of SOT were identified for pediatric SOT recipients and their parents/caregivers. The majority of parent/caregiver and youth participants preferred to learn about the risk of PTS symptoms and available support resources before the transplant. Participants recommended several improvements and additional resources to support PTS, which centered around increasing access to mental health care, counseling and therapy, patient-centered support, and advocacy. CONCLUSIONS: By exploring the personal experiences and perspectives of pediatric SOT recipients and their parents/caregivers, this work can be used to improve the accessibility and quality of mental health supports for PTS.
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How this classification was reachedexpand
Full frame distilled prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.
Codex and Gemma teacher scores by category
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.000 | 0.000 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.000 | 0.000 |
| Science and technology studies | 0.000 | 0.000 |
| Scholarly communication | 0.000 | 0.000 |
| Open science | 0.000 | 0.000 |
| Research integrity | 0.000 | 0.000 |
| Insufficient payload (model declined to judge) | 0.000 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one teacher head, not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".