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Record W4415004850 · doi:10.3138/jcin-2025-0007

An uncommon finding of Menke-Hennekam syndrome 1 associated with congenital diaphragmatic hernia and autism-like features

2025· article· en· W4415004850 on OpenAlexaff
Kamini Raghuram, Jacqueline Jackson, David Chitayat

Bibliographic record

VenueJournal of Clinical Insights in Neonatology · 2025
Typearticle
Languageen
FieldMedicine
TopicCongenital Diaphragmatic Hernia Studies
Canadian institutionsHospital for Sick ChildrenUniversity of TorontoSickKids FoundationMount Sinai Hospital
Fundersnot available
KeywordsCongenital diaphragmatic herniaDiaphragmatic breathingGeneDevelopmental disorderMutationNoveltyCongenital disease

Abstract

fetched live from OpenAlex

Introduction: Menke-Hennekam syndrome 1 (MKHK1) is a congenital disorder resulting from mutations associated with CREBBP pathogenic variants mapped to 16p13.3. This ubiquitously expressed gene is involved in the transcription of several transcription factors that have key roles in embryonic development, homeostasis, and growth control. Interestingly, although mutations in this gene are classically associated with Rubinstein-Taybi syndrome (RTS), individuals with MKHK1 do not share the distinct facial features of RTS or other dysmorphisms. Case Presentation: In this case report, we present the case of an individual who presented antenatally with congenital diaphragmatic hernia and was subsequently found to have a pathogenic heterozygous de novo variant in the CREBBP gene associated with MKHK1 (c.5599C > T; p.Arg1867Trp). We present the clinical manifestations and discuss the novelty of congenital diaphragmatic hernia in this condition and the developmental profile associated with the condition. Conclusion: We report a case of a child with antenatally detected CDH and normal CMA who was later found to have a de novo variant consistent with Menke-Hennekam syndrome on WES. This highlights the value of considering WES when CMA is normal, and the importance of close developmental follow-up to enable early intervention and family support.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.000
metaresearch head score (Gemma)0.003
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Case report · Consensus signal: Case report
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.003
Threshold uncertainty score0.010

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.0000.003
Meta-epidemiology (narrow)0.0010.000
Meta-epidemiology (broad)0.0010.000
Bibliometrics0.0020.001
Science and technology studies0.0010.001
Scholarly communication0.0000.001
Open science0.0010.001
Research integrity0.0020.001
Insufficient payload (model declined to judge)0.0030.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.032
GPT teacher head0.369
Teacher spread0.337 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designCase report
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations0
Published2025
Admission routes1
Has abstractyes

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