Beyond the skin: Stories of advocacy and resilience from women with Hidradenitis Suppurativa
Bibliographic record
Abstract
Hidradenitis Suppurativa (HS) is a chronic, recurrent inflammatory skin condition that significantly impacts quality of life. The purpose of this qualitative study was to gain a deeper understanding of the lived experiences of women diagnosed with HS by amplifying a more integrative, strength-based understanding of the condition. We explored the lived experiences of 25 Canadian women with HS, focusing on their challenges with HS and how they overcame them through strategies of resilience and meaning-making. Reflexive thematic analysis techniques, situated with a feminist social constructionist lens, generated four major themes: (1) Developing Agency in Symptom Management, (2) Cultivating Methods to Cope, (3) Harnessing One's Voice for Advocacy and Change, and (4) Gaining Insight and Growth Through Life-Long Learning. This study provides critical insights into improving care and support for women with HS, emphasizing the importance of patient-centered and holistic approaches to HS care that prioritize resilience and address systemic inequities.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.006 | 0.015 |
| Meta-epidemiology (narrow) | 0.001 | 0.001 |
| Meta-epidemiology (broad) | 0.001 | 0.001 |
| Bibliometrics | 0.001 | 0.001 |
| Science and technology studies | 0.020 | 0.021 |
| Scholarly communication | 0.006 | 0.005 |
| Open science | 0.002 | 0.008 |
| Research integrity | 0.003 | 0.007 |
| Insufficient payload (model declined to judge) | 0.003 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".