L’indépendance à tout prix : une analyse phénoménologique interprétative d’entretiens narratifs de jeunes survivants à long terme de cancer pédiatrique
Bibliographic record
Abstract
Les jeunes survivants à long terme de cancer pédiatrique doivent composer avec le développement de leur autonomie, un défi associé au début de l’âge adulte. Alors que la recherche et la théorie montrent que l’environnement social influence ce processus, nous en savons peu sur le rôle de l’expérience de cancer dans celui-ci. Cette étude consiste en une seconde analyse d’entretiens menés auprès de jeunes survivants de leucémie pédiatrique, en portant attention à la question de la dépendance-indépendance à leurs parents. Comprendre l’expérience de l’indépendance chez 12 survivants à long terme de leucémie pédiatrique et ses implications sur le fonctionnement individuel. Douze jeunes adultes survivants de cancer pédiatrique (9 femmes, M âge = 22 ans, Min = 18 ans ; Max = 27 ans) ont été recrutés via la clinique de suivi à long terme d’un centre de traitement du cancer en Amérique du Nord. Des entretiens narratifs (McAdams, 2007) ont été menés et analysés dans le cadre d’une analyse phénoménologique interprétative (Smith et al., 2022). Deux thèmes expérientiels de groupe ont émergé : (1) L’indépendance vécue comme un idéal en réaction à la vulnérabilité caractéristique de la trajectoire de cancer et (2) La quête de l’indépendance motivée par de multiples expériences relationnelles dysfonctionnelles avec les figures centrales d’attachement. Les résultats suggèrent que la quête d’indépendance a des coûts importants dans la sphère sociale sur le long terme. Les résultats montrent que les dynamiques d’indépendance doivent être prises en compte par les équipes soignantes dès la phase de traitement afin d’optimiser la santé psychique à long terme des survivants. Young, long-term survivors of childhood cancer face the challenge of developing the independence associated with early adulthood. While research and theory indicate that the social environment influences this process, little is known about the role of the cancer experience in this regard. This study consists of a second analysis of interviews conducted with young survivors of childhood leukemia, paying attention to the issue of dependency-independence towards their parents. To understand the experience of independence in 12 long-term survivors of childhood leukemia and its impact on individual functioning. Twelve young adult survivors of pediatric cancer (9 females, M age = 22 years, Min = 18 years; Max = 27 years) were recruited through the long-term follow-up clinic of a cancer treatment center in North America. Narrative interviews (McAdams, 2007) were conducted and analyzed using interpretive phenomenological analysis (Smith et al., 2022). Two group experiential themes emerged: (1) Independence experienced as an ideal in response to the vulnerability characteristic of the cancer trajectory, and (2) The quest for independence motivated by multiple dysfunctional relational experiences with central attachment figures. Results suggest that the pursuit of independence has significant long-term social costs. The results show that the dynamics of independence need to be considered by care teams from the treatment phase onwards to optimise survivors’ long-term psychological health.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.005 | 0.010 |
| Meta-epidemiology (narrow) | 0.001 | 0.000 |
| Meta-epidemiology (broad) | 0.001 | 0.000 |
| Bibliometrics | 0.001 | 0.001 |
| Science and technology studies | 0.007 | 0.010 |
| Scholarly communication | 0.006 | 0.005 |
| Open science | 0.001 | 0.004 |
| Research integrity | 0.002 | 0.003 |
| Insufficient payload (model declined to judge) | 0.002 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".