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Record W4416422574 · doi:10.1177/23743735251399981

Championing Ethical Engagement of Youth in Healthcare: A Reflective Commentary

2025· article· en· W4416422574 on OpenAlexaff
Jeanna Pillainayagam, Alexa Petta, Brooke Allemang

Bibliographic record

VenueJournal of Patient Experience · 2025
Typearticle
Languageen
FieldHealth Professions
TopicAdolescent and Pediatric Healthcare
Canadian institutionsSickKids FoundationHospital for Sick ChildrenUniversity of TorontoMcMaster University
Fundersnot available
KeywordsAccountabilityYouth engagementUnintended consequencesService delivery frameworkPopulationService (business)Health careEthical issuesService provider

Abstract

fetched live from OpenAlex

Engaging youth as advisors in health research and service delivery is a rapidly growing practice, yet there are no consistent frameworks or ethical guidelines available to ensure the protection of this vulnerable population from unintended harm. This commentary aims to bring awareness to 3 ethical complexities observed in the authors' own participation within the field of youth engagement in health research and service delivery: (1) a lack of standardized safeguards for youth advisors, (2) a lack of accountability for the safety of youth advisors, and (3) the need to cater engagement activities to the development and well-being of youth. Further, recommendations for meaningfully engaging youth advisors are proposed with the aim of ensuring their safety and enabling opportunities to drive impactful outcomes in health care.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.076
metaresearch head score (Gemma)0.303
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Not applicable · Consensus signal: Not applicable
GenreCandidate signal: Commentary · Consensus signal: Commentary
Teacher disagreement score0.076
Threshold uncertainty score0.399

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.0760.303
Meta-epidemiology (narrow)0.0010.001
Meta-epidemiology (broad)0.0020.002
Bibliometrics0.0020.002
Science and technology studies0.0110.037
Scholarly communication0.0130.013
Open science0.0070.010
Research integrity0.0400.058
Insufficient payload (model declined to judge)0.0020.001

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.102
GPT teacher head0.490
Teacher spread0.387 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designNot applicable
Domainnot available
GenreCommentary

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations1
Published2025
Admission routes1
Has abstractyes

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