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Record W4416422574 · doi:10.1177/23743735251399981

Championing Ethical Engagement of Youth in Healthcare: A Reflective Commentary

2025· article· en· W4416422574 on OpenAlexaff
Jeanna Pillainayagam, Alexa Petta, Brooke Allemang

Bibliographic record

VenueJournal of Patient Experience · 2025
Typearticle
Languageen
FieldHealth Professions
TopicAdolescent and Pediatric Healthcare
Canadian institutionsSickKids FoundationHospital for Sick ChildrenUniversity of TorontoMcMaster University
Fundersnot available
KeywordsAccountabilityYouth engagementUnintended consequencesService delivery frameworkPopulationService (business)Health careEthical issuesService provider

Abstract

fetched live from OpenAlex

Engaging youth as advisors in health research and service delivery is a rapidly growing practice, yet there are no consistent frameworks or ethical guidelines available to ensure the protection of this vulnerable population from unintended harm. This commentary aims to bring awareness to 3 ethical complexities observed in the authors' own participation within the field of youth engagement in health research and service delivery: (1) a lack of standardized safeguards for youth advisors, (2) a lack of accountability for the safety of youth advisors, and (3) the need to cater engagement activities to the development and well-being of youth. Further, recommendations for meaningfully engaging youth advisors are proposed with the aim of ensuring their safety and enabling opportunities to drive impactful outcomes in health care.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.001
metaresearch head score (Gemma)0.000
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Qualitative · Consensus signal: none
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.530
Threshold uncertainty score0.980

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0010.000
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.000
Bibliometrics0.0000.001
Science and technology studies0.0000.000
Scholarly communication0.0000.000
Open science0.0000.000
Research integrity0.0000.002
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.102
GPT teacher head0.490
Teacher spread0.387 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one teacher head, not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designQualitative
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations1
Published2025
Admission routes1
Has abstractyes

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