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Participant acceptability and feasibility of virtual and digital health solutions in a phase IIa COPD trial

2025· article· W4416638145 on OpenAlexaboutno aff
Janwillem Kocks, Renate Kat, W. Van Der Veen, Yoran H. Gerritsma, William Dott, O. Elizarova, Robin W. Hughes, Caroline Jonstrand, Cecilia Kristensson, Andrzej Nowojewski, A. Wheal, Marika T. Leving

Bibliographic record

Venuenot available
Typearticle
Language
FieldMedicine
TopicEthics in Clinical Research
Canadian institutionsnot available
Fundersnot available
KeywordsThematic analysisConcordanceParticipant observationData collectionQualitative researchDigital healthSample (material)Clinical trial

Abstract

fetched live from OpenAlex

Introduction: Understanding participant experience is crucial for improving participant satisfaction, retention, data quality, and hereby trial efficiency. This is especially important when incorporating novel procedures like digital patient solutions and virtual study elements. Methods: This study explored participant experiences in the CRESCENDO phase-II COPD study, focusing on feasibility and acceptance of remote coached spirometry. Semi-structured qualitative interviews (n=21) and study participant feedback questionnaire (SPFQ)(n=83) were conducted in Bulgaria, Canada, Poland, Spain, UK, and USA. Interview data was analysed using thematic analysis. Results: Participants (mean age 66.8year, 52%male) were generally satisfied with the trial. Digital and virtual elements were appreciated and easy to use, though frequent technical issues were considered bothersome. When functioning properly, participants reported minimal differences between in-person and remote spirometry coaching. Most preferred in-person visits due to positive interactions with study staff, which greatly influenced satisfaction. The high concordance between the interviews and SPFQ validated the interview results and confirmed the utility of the SPFQ to measure participant experience. Conclusions: This study highlights the potential of digital and virtual elements in clinical trials while addressing technical challenges. Despite a small interview sample and potential selection bias, findings reveal cultural and individual differences in experiences and preferences. Practical recommendations include allowing participants to "design" their trial procedures, such as chosing between in-person or virtual visits.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.167
metaresearch head score (Gemma)0.262
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: none
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.167
Threshold uncertainty score0.882

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.1670.262
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0010.001
Bibliometrics0.0000.000
Science and technology studies0.0020.002
Scholarly communication0.0030.003
Open science0.0010.003
Research integrity0.0020.001
Insufficient payload (model declined to judge)0.0120.001

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.685
GPT teacher head0.651
Teacher spread0.034 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designObservational
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

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Citations0
Published2025
Admission routes1
Has abstractyes

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