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Record W4416935774 · doi:10.1093/jamiaopen/ooaf134

Biomedical data repositories require governance for artificial intelligence/machine learning applications at every step

2025· article· en· W4416935774 on OpenAlex

Why this work is in the frame

A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.

affAt least one author lists a Canadian institution in the pinned OpenAlex snapshot.

Bibliographic record

VenueJAMIA Open · 2025
Typearticle
Languageen
FieldDecision Sciences
TopicScientific Computing and Data Management
Canadian institutionsSimon Fraser University
FundersNational Human Genome Research InstituteNational Institutes of Health
KeywordsCorporate governanceData collectionData governanceInformation governanceClinical governance

Abstract

fetched live from OpenAlex

Objectives: The NIH's Bridge2AI Program has funded 4 "new flagship biomedical and behavioral datasets that are properly documented and ready for use with AI [artificial intelligence] or ML [machine learning] technologies" to promote the adoption of AI. This article discusses the challenges and lessons learned in data collection and governance to ensure their responsible use. Materials and Methods: We outline major steps involved in creating and using these datasets in ethically acceptable ways, including (1) data selection-what data are being selected and why, (2) increasing attention to public concerns, (3) the role of participant consent depending on data source, (4) ensuring responsible use, (5) where and how data are stored, (6) what control participants have over data sharing, (7) data access, and (8) data download. Results: We discuss ethical, legal, social, and practical challenges raised at each step of creating AI-ready datasets, noting the importance of addressing issues of future data storage and use. We identify some of the many choices that these projects have made, including how to incorporate public input, where to store data, and defining criteria for access to and downloading data. Discussion: The processes involved in the establishment and governance of the Bridge2AI datasets vary widely but have common elements, suggesting opportunities for future programs to lean upon Bridge2AI strategies. Conclusions: This article discusses the challenges and lessons learned in data collection and governance to ensure their responsible use, particularly as confronted by the 4 distinct projects funded by this program.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.007
metaresearch head score (Gemma)0.007
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesScholarly communication, Open science
Consensus categoriesOpen science
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Not applicable · Consensus signal: none
GenreCandidate signal: Methods · Consensus signal: none
Teacher disagreement score0.893
Threshold uncertainty score0.999

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0070.007
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.000
Bibliometrics0.0000.001
Science and technology studies0.0010.000
Scholarly communication0.0020.001
Open science0.0060.009
Research integrity0.0000.000
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.240
GPT teacher head0.467
Teacher spread0.227 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it