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Record W4417183901 · doi:10.1177/26323524251396994

Connecting communities across the globe: Atlas protocol

2025· article· en· W4417183901 on OpenAlexaff
Rebecca Newell, Juan Esteban Correa‐Morales, Vilma Tripodoro, Steven Vanderstichelen, Ghauri Aggarwal, Samar Aoun, Erin Das, Farah Demachkieh, Silvia Librada Flores, Julieanne Hilbers, Julie Lapenskie, Emmanuel Luyirika, Sahar Mohammed, Masanori Mori, Ekkapop Sittiwantana, Libby Sallnow

Bibliographic record

VenuePalliative Care and Social Practice · 2025
Typearticle
Languageen
FieldMedicine
TopicGlobal Health and Surgery
Canadian institutionsCanadian Hospice Palliative Care Association
Fundersnot available
KeywordsProtocol (science)Palliative careCitizen journalismPublic healthHealth careParticipatory action research

Abstract

fetched live from OpenAlex

Background: Providing universal access to palliative care is increasingly recognised as a global public health priority, especially in low- and middle-income countries. Compassionate communities could help with provision by fostering community-led responses to dying, death and grief. Despite their global growth, compassionate communities are often absent from national and international palliative care strategies, and few are represented in academic literature. This, along with their diversity and community-defined nature, can contribute to difficulties in documentation, evaluation and visibility, limiting the ability to showcase their benefits, form partnerships and evaluate practice. Objectives: This study protocol outlines the development of the first global atlas of compassionate communities, aiming to map their locations and increase understanding of their structures, activities and impacts. Design: A participatory methodology was used. This enabled global participants to complete and share the survey based on their experiences with community programmes addressing serious illness, dying and grief. A diverse steering committee guided the design, validation and piloting of the survey to ensure clarity, cultural sensitivity and accessibility. Eighteen global experts contributed to developing and validating the survey, with 14 of 15 items meeting the Content Validity Index threshold. The final survey captures data on location, aims, evaluation, challenges and impact. Dissemination involves global networks, social media and snowball sampling. Discussion: This protocol addresses a critical gap in Public Health Palliative Care literature by providing an inclusive and participatory method to map the compassionate community's landscape. The resulting data will promote visibility, partnerships and future research, supporting greater recognition of global compassionate communities and their contributions to primary palliative care.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.001
metaresearch head score (Gemma)0.001
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesScience and technology studies
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Qualitative · Consensus signal: none
GenreCandidate signal: Empirical · Consensus signal: none
Teacher disagreement score0.604
Threshold uncertainty score1.000

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0010.001
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.000
Bibliometrics0.0000.000
Science and technology studies0.0010.000
Scholarly communication0.0000.000
Open science0.0000.000
Research integrity0.0000.000
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.060
GPT teacher head0.461
Teacher spread0.402 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one teacher head, not a consensus.

Study designQualitative
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations0
Published2025
Admission routes1
Has abstractyes

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