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Record W6908435990 · doi:10.26190/unsworks/26323

Multi-site research and data sharing

2017· article· en· W6908435990 on OpenAlex

Why this work is in the frame

A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.

aboutThe title or abstract carries a Canadian signal from the geographic lexicon.
no affNo Canadian affiliation: this work is invisible to an affiliation-only frame.
No Canadian affiliation. An affiliation-only frame, the usual design, would never have seen this work. It is one of the works that make the case for inverting the frame.

Bibliographic record

VenueOpen MIND · 2017
Typearticle
Languageen
FieldMedicine
TopicEthics in Clinical Research
Canadian institutionsnot available
Fundersnot available
KeywordsData sharingData governanceInformation governanceContext (archaeology)PoolingData Protection Act 1998Data accessHealth careInformation privacyProcess (computing)

Abstract

fetched live from OpenAlex

Context and aims Researchers increasingly need to share their data. This requires both adherence to Australia’s robust privacy legislation and preparation of comprehensive data management plans. This paper outlines the data-sharing issues managed by IMPACT, a 6-site Canadian-Australian collaborative research program designed to improve access to primary health care for vulnerable individuals. Each site used a common protocol to evaluate its own intervention, with the aim of pooling data across the sites. Ethics applications were submitted in each site. Methods Consultations were conducted with key informants within one Australian university (UNSW Sydney) and external informants to develop a data sharing plan. The authors reflect upon the process and have identified lessons for others wanting to share data. Findings Data sharing for a multi-site multi-country study was complex. University policies and infrastructure have been changing, not all sharing tools were available and support personnel were still learning how to implement policies related to data sharing. Furthermore, site-specific ethics applications did not specify that the data was part of a larger study. Consequently, the other 5 sites were deemed as external. We needed multiple consultations with ethics, IT, and data governance units to understand data classification (patient data is inherently sensitive), who needed access, and how access could be enabled. Bringing these support units together assisted a common understanding – this had not been previous practice. Innovative contribution to policy, practice and/or research Early consultations with university ethics and data governance units is recommended for planning data sharing – particularly for patient data and complex projects.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

Direct model labels (unvalidated)

Per-model category and study-design labels from the labeling rounds. They are machine output, unvalidated, and the disagreement between models ships as data. No study design here is MEDLINE-validated yet.

Model armCategoriesStudy designConfidence
gemmaMetaresearchOpen science
Domain: Reproducibility · Genre: Empirical
About the Canadian research system: no · About a Canadian topic: no
Theoretical or conceptuallow
gptMetaresearchScholarly communicationOpen science
Domain: Reproducibility · Genre: Commentary
About the Canadian research system: no · About a Canadian topic: no
Not applicablelow
models splitAgreement compares identical category sets and study designs across arms.

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.017
metaresearch head score (Gemma)0.037
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesMetaresearch, Open science, Insufficient payload (model declined to judge)
Consensus categoriesInsufficient payload (model declined to judge)
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: Observational
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.331
Threshold uncertainty score1.000

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0170.037
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.000
Bibliometrics0.0000.000
Science and technology studies0.0010.001
Scholarly communication0.0010.000
Open science0.0030.017
Research integrity0.0000.002
Insufficient payload (model declined to judge)0.0010.001

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.966
GPT teacher head0.773
Teacher spread0.193 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it