Between struggle and hope: Understanding the oral care experiences of children living with Autism spectrum disorder(ASD); A parentâs perspective
Bibliographic record
Abstract
AbstractThe unique characteristics of children living with Autism Spectrum Disorder (ASD) can make it challenging for them to maintain their oral health. Children living with ASD may display unpredictable behaviours and communication patterns that act as barriers to receiving proper oral care. Many studies have explored the oral health, dental needs, and oral health management techniques of children with ASD worldwide (1, 2); however, very little is known about the oral health of children with ASD living in Canada (3). Therefore, this research aims to provide an in-depth exploration of the child oral care experiences and concerns of parents of children living with ASD A qualitative research approach was selected for this research because of its ability to provide a deeper understanding of experiences related to ASD and oral health (4). The researchers adopted an Interpretive Phenomenology Analysis (IPA) approach which explicitly illuminates the parent’s experiences and concerns toward oral care in depth. Six parents of a child and/or adolescent with ASD were interviewed. The interpretation of their accounts revealed three broad findings in the care of their child’s oral health, namely, “Oral care as a struggle”, “struggling with(out) giving up” and “Oral care as a Hope”, along with other subordinate themes.The experiences of parents or care providers raising a child with ASD offered valuable insights into the strategies they use to manage the oral health needs of their children. Parallel with the objectives of this study, the parents’ narratives documented many barriers that complicated the oral care experience of their children. The first-hand knowledge and understanding their stories reveal have the potential to inform clinical knowledge and practice, specifically in terms of treatment approaches that are most effective. This research will help inform the development of a coherent and adaptive health system that is responsive to the oral health needs of children with ASD and to achieve better Oral Health Related Quality of Life (OHRQL) for those children.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.007 | 0.009 |
| Meta-epidemiology (narrow) | 0.001 | 0.001 |
| Meta-epidemiology (broad) | 0.001 | 0.001 |
| Bibliometrics | 0.002 | 0.001 |
| Science and technology studies | 0.010 | 0.013 |
| Scholarly communication | 0.007 | 0.007 |
| Open science | 0.002 | 0.008 |
| Research integrity | 0.002 | 0.006 |
| Insufficient payload (model declined to judge) | 0.002 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".