The Lived Experiences of African Canadian Custodial Caregivers of Minors With a Diagnosis of Autism Spectrum Disorder in Alberta, Canada
Bibliographic record
Abstract
Autism spectrum disorder (ASD) encompasses a broad range of symptoms, skills, impairments, or disability. It is characterized by a persistent deficit in group communication and social interaction, limited behaviors such as walking, and less interest in interacting with others and participating in social events. Existing studies suggest that there are many unique challenges associated with caring for a child with ASD. Despite growing evidence of an increase in diagnosis and greater awareness of the challenges associated with caring for children on the autism spectrum, there remains a gap in the research about the unique experiences of custodial caregivers of minors with ASD. The purpose of the phenomenological study was to explore the lived experiences of African Canadian custodial caregivers of minors diagnosed with ASD in Alberta, Canada. The guiding theoretical framework for this study was Bronfenbrenner’s ecological system theory. Ten custodial caregivers of children with autism were recruited through purposeful and snowball sampling. Data were collected by conducting semi-structured interviews. Collaizi’s seven-step process for phenomenological research analysis yielded nine emergent themes: motivation for study, caregiver experience, reaction to diagnosis, impact of diagnosis, caregiver routine, cultural conflict, mental state of caregivers, service utilization, desired resources, and recommendations to other caregivers. The positive social change implications of this study include the potential for increased awareness and understanding of ASD, which may lead to greater acceptance and support for families of individuals with ASD within the African Canadian community in Alberta, Canada.
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How this classification was reachedexpand
Full frame distilled prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.
Codex and Gemma teacher scores by category
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.000 | 0.000 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.000 | 0.001 |
| Science and technology studies | 0.000 | 0.001 |
| Scholarly communication | 0.000 | 0.000 |
| Open science | 0.001 | 0.000 |
| Research integrity | 0.000 | 0.000 |
| Insufficient payload (model declined to judge) | 0.001 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one teacher head, not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".