STAND: study on the transition of adolescents with neurological disorders
Bibliographic record
Abstract
Background: Children with chronic neurological disorders are increasingly surviving to adulthood and transitioning to adult healthcare.Our objectives were to describe, from the neurologists' perspective, current practice and views on health care transition in Quebec, including barriers and facilitators to the process, if patients experience a gap in care, and if adult neurologists are adequately trained to care for these patients.Methods: We conducted a cross sectional study using two postal surveys of all Quebec pediatric and adult neurologists.Results: The overall response rate to the mailing was 65.4%, with 51.5% participation rate.Most do not have a transition program in place but some plan to develop one in the next two years.Nearly half of neurologists believed patients experience a gap in care during the transition process.Half of neurologists agreed that adult neurologists may not have adequate training in childhood onset chronic neurological disorders to prepare them to manage these disorders in adulthood, and 60% of pediatric neurologists reported having difficulty finding an adult provider for their patients.The majority of neurologists agreed that patient's knowledge of their medical condition and medication, compliance with medication, capacity for active participation during office visits, co-existence of a communication or behavioral disorder, and need for multidisciplinary care were all important factors affecting the success of transition.Conclusion: Half of surveyed neurologists believed patients experience a gap in care during the transition period.Neurologists reported multiple barriers to the transition process including both patient and physician specific factors.Almost half of surveyed physicians believed adult neurologists are not adequately trained to care for this growing patient population.
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How this classification was reachedexpand
Full frame distilled prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.
Codex and Gemma teacher scores by category
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.001 | 0.000 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.000 | 0.001 |
| Science and technology studies | 0.002 | 0.000 |
| Scholarly communication | 0.000 | 0.000 |
| Open science | 0.000 | 0.000 |
| Research integrity | 0.000 | 0.001 |
| Insufficient payload (model declined to judge) | 0.001 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one teacher head, not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".