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Record W7117486146 · doi:10.1371/journal.pone.0339025

Recommendations to improve race identification in health records: A rapid scoping review

2025· article· en· W7117486146 on OpenAlexafffund
Megan Chow, Arrani Senthinathan, Rasha El-Kotob, Sara J. T. Guilcher

Bibliographic record

VenuePLoS ONE · 2025
Typearticle
Languageen
FieldSocial Sciences
TopicRacial and Ethnic Identity Research
Canadian institutionsSunnybrook Health Science CentreToronto Rehabilitation InstituteUniversity of TorontoQueen's University
FundersQueen's University
KeywordsOperationalizationHealth careGrey literatureIdentification (biology)Health equityThematic analysisRace (biology)StandardizationRace and health

Abstract

fetched live from OpenAlex

Race is a critical variable in understanding health disparities, yet health databases lack consistent practices for identifying race. This rapid scoping review aimed to examine existing recommendations for identifying race in health databases and highlight gaps in current literature to guide future research. Following the Joanna Briggs Institute methodology and PRISMA-ScR guidelines, searches were conducted in MEDLINE, Embase, and Scopus for relevant literature published between January 2019 and February 2025. Articles were included if they addressed race identification in health databases, were available in English, had full-text access, and were peer-reviewed, knowledge syntheses, or grey literature. All articles were double screened in Covidence, and twenty-one articles were included. Descriptive thematic analysis identified five recommendation categories, including, self-identification and patient-centered practice, standardization across healthcare systems, data quality and completeness, algorithmic and predictive methods, and disaggregated data use and cross sector collaboration. There were common findings on the value of self-identification, cross-system consistency, and tools like natural language processing and imputation models. Some articles emphasized combining multiple strategies to improve system-wide practices, and overall, minimal conflicting evidence was observed. However, gaps remain in operationalizing these recommendations across various healthcare settings. Future directions should prioritize implementation-focused research and cross-jurisdictional comparisons to inform scalable, equity-driven improvements in race data practices. Ultimately, improving the consistency and accuracy of race data will enhance health equity monitoring, guide equitable resource distribution, and inform policies that better reflect the needs of racialized populations.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.331
metaresearch head score (Gemma)0.603
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesMetaresearch
Consensus categoriesMetaresearch
DomainCandidate signal: Methods · Consensus signal: none
Study designCandidate signal: Systematic review · Consensus signal: Systematic review
GenreCandidate signal: Review · Consensus signal: Review
Teacher disagreement score0.669
Threshold uncertainty score0.826

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.3310.603
Meta-epidemiology (narrow)0.0040.005
Meta-epidemiology (broad)0.0090.016
Bibliometrics0.0510.036
Science and technology studies0.0050.005
Scholarly communication0.0190.045
Open science0.0100.016
Research integrity0.0130.012
Insufficient payload (model declined to judge)0.0150.008

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.155
GPT teacher head0.450
Teacher spread0.295 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; the direct Gemma label and the distilled Codex classifier agree on what is shown here.

Study designSystematic review
DomainMethods
GenreReview

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations0
Published2025
Admission routes2
Has abstractyes

Explore more

Same venuePLoS ONESame topicRacial and Ethnic Identity ResearchFrench-language works237,207