Communicating Needs and Features of IBD Experiences study: Canadian individuals and healthcare professional perceptions of the experience and impact of symptoms of moderate-to-severe ulcerative colitis and Crohn’s disease
Bibliographic record
Abstract
Background: Crohn's disease (CD) and ulcerative colitis (UC) are chronic inflammatory conditions of the gastrointestinal tract associated with impaired quality of life. The Communicating Needs and Features of IBD Experiences (CONFIDE) study aimed to assess the impact of CD/UC symptoms on the lives of people with IBD and elucidate any communication gaps between healthcare professionals (HCPs) and people with IBD. The current Canadian study replicates the CONFIDE study previously conducted in the United States, Europe, and Japan. Methods: Online cross-sectional surveys were conducted between February and April 2023 among people with moderate-to-severe CD/UC and prescribing HCPs. Disease severity was defined using criteria based on previous treatment, steroid use, and/or hospitalization. Data were presented using descriptive analyses. Results: Surveys were completed by 107 individuals with CD, 82 individuals with UC, and 53 HCPs. Bowel urgency was the second most common symptom reported by individuals, following diarrhoea, and it was the most frequently reported symptom leading to declining participation in work/school, social events, and physical exercise. HCP-perceived symptoms with the greatest impact on people with IBD and their treatment decisions were diarrhoea and blood in stool. While most HCPs reported proactive discussion of bowel urgency with their patients, more than a third of those experiencing this symptom reported discussing it infrequently during HCP appointments. Conclusions: The results indicate that CD/UC symptoms have a substantial impact on the daily lives of people with IBD, even among those receiving advanced therapies. Although both HCPs and individuals with IBD reported a substantial symptom burden, their perceptions regarding the most impactful symptoms differed. Bowel urgency was identified as a common yet overlooked symptom and should be incorporated into regular IBD assessments.
Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.
How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.001 | 0.004 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.001 |
| Bibliometrics | 0.001 | 0.002 |
| Science and technology studies | 0.005 | 0.001 |
| Scholarly communication | 0.001 | 0.001 |
| Open science | 0.001 | 0.002 |
| Research integrity | 0.000 | 0.001 |
| Insufficient payload (model declined to judge) | 0.002 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".