Nöromüsküler Hastalıkları Olan Pediatrik Hastaların Aktivite Performansı: Hasta ve Ebeveynlerinin Bakış Açıları
Bibliographic record
Abstract
Purpose: Neuromuscular disorders consists of a group of various hereditary and acquired diseases.Activity and participation are important issues in children with neuromuscular disorders for social inclusion in community.The study aimed to analyse and compare the occupational performance of children with neuromuscular disorders from the perspectives of children and their parents.Methods: Fifty-seven children with neuromuscular disorders and their parents were included in the study.Brooke Upper and Lower Extremity Functional Classifications were used to determine the functional levels of children.The occupational performance was analyzed by Canadian Occupational Performance Measurement.Disability was investigated by using Pediatric Evaluation of Disability Inventory and functional independence by Wee Functional Independence Measurement.Results: Fifteen (26.32%) girls and 42 (73.68%)boys with neuromuscular disorders and their parents were included in the study.The mean ages of the children were 9.66±3.16years.Functional mobility activities were determined to be the most important occupational area by both the children and parents.The second most important area was their social roles for children and independence-oriented activities for parents.Occupational performance score of the children was 6.69±2.98 from the point of children, while 5.69±2.84according to their parents (p<0.05).Occupational satisfaction of children with neuromuscular disorders was scored 6.29±3.18by children, while 4.82±3.21by their parents (p<0.05).Conclusion: Except for the concurrence in most important occupational area, no consensus was formed between children and parents in terms of children's occupational performance and satisfaction scores.It was observed that the activity performance and satisfaction expectations of both children and families are different.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.001 | 0.001 |
| Meta-epidemiology (narrow) | 0.001 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.001 | 0.000 |
| Science and technology studies | 0.001 | 0.000 |
| Scholarly communication | 0.001 | 0.001 |
| Open science | 0.000 | 0.001 |
| Research integrity | 0.001 | 0.000 |
| Insufficient payload (model declined to judge) | 0.005 | 0.001 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".