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Record W2315279778 · doi:10.3899/jrheum.131307

Toward a Generalized Framework of Core Measurement Areas in Clinical Trials: A Position Paper for OMERACT 11

2014· article· en· W2315279778 on OpenAlexaffvenue
Maarten Boers, Leanne Idzerda, John Kirwan, Dorcas Beaton, Reuben Escorpizo, Annelies Boonen, Susan Magasi, Ian Sinha, Gerold Stucki, Peter Tugwell

Bibliographic record

VenueThe Journal of Rheumatology · 2014
Typearticle
Languageen
FieldSocial Sciences
TopicDelphi Technique in Research
Canadian institutionsSt. Michael's HospitalCentre for Global Health ResearchUniversity of Ottawa
Fundersnot available
KeywordsMedicineOutcome (game theory)Psychological interventionClinical trialConceptual frameworkProcess (computing)Scope (computer science)Outcomes researchCore (optical fiber)Resource (disambiguation)MEDLINESet (abstract data type)Process managementMedical physicsManagement scienceAlternative medicineComputer sciencePathologyNursing

Abstract

fetched live from OpenAlex

OBJECTIVE: The Outcome Measures in Rheumatology (OMERACT) international consensus initiative has successfully developed core sets of outcome measures for trials of many rheumatologic conditions, but its expanding scope called for clarification and updating of its underlying conceptual framework and working process. To develop a core set of what we propose to call outcome measurement instruments, consensus must be reached both on what to measure and how to measure. This article deals with the first part: a framework necessary to ensure comprehensiveness of the domains chosen for measurement. We formulated a conceptual framework of core measurement areas in clinical trials, for discussion at the OMERACT 11 conference. METHODS: We formulated a framework and definitions of key concepts adapted from the literature, and followed an iterative consensus process (small group processes and an Internet-based survey) of those involved including patients, health professionals, and methodologists within and outside rheumatology. RESULTS: The draft framework comprises 4 core "areas": death, life impact (all aspects of how a patient feels or functions), resource use (monetary and other costs of the health condition and interventions), and pathophysiologic manifestations (disease-specific clinical and psychological signs, biomarkers, and potential surrogate outcome measures necessary to assess specific effects). The survey responses (262 of 2293, response rate 11%) indicated broad agreement with the draft framework and the proposed definitions of key concepts, including understandability and feasibility. A total of 283 comments were processed. CONCLUSION: In an iterative process, we have developed a generic framework for outcome measurement and working definitions of key concepts ready for discussion at the OMERACT 11 conference.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.765
metaresearch head score (Gemma)0.632
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesMetaresearch
Consensus categoriesMetaresearch
DomainCandidate signal: Methods · Consensus signal: Methods
Study designCandidate signal: Theoretical or conceptual · Consensus signal: Theoretical or conceptual
GenreCandidate signal: Methods · Consensus signal: Methods
Teacher disagreement score0.235
Threshold uncertainty score0.290

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.7650.632
Meta-epidemiology (narrow)0.0060.004
Meta-epidemiology (broad)0.0080.013
Bibliometrics0.0120.011
Science and technology studies0.0080.044
Scholarly communication0.0310.034
Open science0.0160.023
Research integrity0.0240.046
Insufficient payload (model declined to judge)0.0030.001

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.419
GPT teacher head0.534
Teacher spread0.116 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; the direct Gemma label and the distilled Codex classifier agree on what is shown here.

Study designTheoretical or conceptual
DomainMethods
GenreMethods

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations45
Published2014
Admission routes2
Has abstractyes

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