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Do clinical trial acronyms affect patients’ interest in clinical trials? A randomized survey.

2013· article· en· W2592222179 on OpenAlexaff
Meagan Wiebe, Liying Zhang, Gillian Spiegle, Yoo‐Joung Ko

Bibliographic record

VenueJournal of Clinical Oncology · 2013
Typearticle
Languageen
FieldBiochemistry, Genetics and Molecular Biology
TopicBiomedical Text Mining and Ontologies
Canadian institutionsUniversity of TorontoHealth Sciences CentreSunnybrook Health Science Centre
Fundersnot available
KeywordsMedicineAcronymClinical trialLikert scaleRandomized controlled trialRespondentFamily medicineInternal medicinePsychology

Abstract

fetched live from OpenAlex

6639 Background: The use of acronyms in naming clinical trials has increased in recent years with minimal empirical examination of the effect that they have on research participants. The naming of trials is often a symbolic act; however, they may have a provocative origin that stimulates associations and influences perceptions of the research. No empirical evidence exists to confirm the supposition that certain trial acronyms may be coercive. The purpose of this study was to determine if a clinical trial title has an influence on a subject’s interest in a fictitious clinical trial. Methods: Two fictitious clinical trial scenarios (prevention and metastatic) for colon cancer were designed with the same three acronym titles (“CURE” a coercive, “RESCUE” a potentially coercive, and “COMET” a neutral acronym). An anonymous paper survey was randomly distributed to patients and caregivers at a comprehensive cancer center over a four-week period. Six different surveys were distributed and self-administered. Participants rated their interest in the clinical trial on a 5-point Likert scale and demographic information was collected. To determine the influence of acronym type on the Likert scale, univariate and multivariate ordinal logistic regression analysis was performed. Results: A response rate of 77.19% (1056/1368) was achieved. The specific acronym type (coercive and potentially coercive versus neutral) had no significant influence on the respondent’s interest in the clinical trial in either the preventive (p=0.787, OR=0.95) or the metastatic (p=0.284, OR=1.21) scenario. Only current (p=0.025, OR=1.56) or prior (p=0.038, OR=1.43) participation in a clinical trial positively influenced respondent’s interest in the fictitious clinical trials irrespective of the acronym title. Conclusions: Acronyms are commonly used in naming clinical trials and may facilitate clinician recall and familiarity. Although trial names may be perceived as potentially coercive, the results from this study suggest that coercive or potentially coercive acronym titles do not appear to influence patients’ or caregivers’ interest in the clinical trial.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.057
metaresearch head score (Gemma)0.149
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesMetaresearch
Consensus categoriesnone
DomainCandidate signal: Methods · Consensus signal: none
Study designCandidate signal: Randomized trial · Consensus signal: none
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.943
Threshold uncertainty score0.302

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.0570.149
Meta-epidemiology (narrow)0.0000.001
Meta-epidemiology (broad)0.0010.002
Bibliometrics0.0010.002
Science and technology studies0.0010.002
Scholarly communication0.0020.003
Open science0.0010.001
Research integrity0.0020.002
Insufficient payload (model declined to judge)0.0060.001

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.440
GPT teacher head0.569
Teacher spread0.129 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.

Study designRandomized trial
DomainMethods
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

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Citations0
Published2013
Admission routes1
Has abstractyes

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