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Record W3006625751 · doi:10.1177/1556264620904627

Research Consent Models Used in Prospective Studies of Neurologically Deceased Organ Donors: A Systematic Review

2020· review· en· W3006625751 on OpenAlexaff
Frédérick D’Aragon, Karen E. A. Burns, Amanda Yaworski, Amanda Lucas, Erika Arseneau, Emilie P. Belley‐Côté, Sonny Dhanani, Anne-Julie Frenette, François Lamontagne, François Lauzier, Aemal Akhtar, Simon Oczkowski, Bram Rochwerg, Maureen O. Meade

Bibliographic record

VenueJournal of Empirical Research on Human Research Ethics · 2020
Typereview
Languageen
FieldMedicine
TopicOrgan Donation and Transplantation
Canadian institutionsCentre hospitalier universitaire de QuébecUniversity of OttawaHealth Sciences CentreUniversité de SherbrookeMcMaster UniversityUniversity of TorontoUniversité LavalUniversité de MontréalUniversity of Alberta
Fundersnot available
KeywordsWaiverInformed consentClinical researchStandardizationPsychologyMedicineBiobankFamily medicineStandard of careAlternative medicineLawPolitical scienceSurgeryPathology

Abstract

fetched live from OpenAlex

Research to inform the care of neurologically deceased organ donors is complicated by a lack of standards for research consent. In this systematic review, we aim to describe current practices of soliciting consent for participation in prospective studies of neurologically deceased donors, including the frequency and justification for these various models of consent. Among the 74 studies included, 14 did not report on any regulatory review, and 13 did not report on the study consent procedures. Of the remaining 47 studies, 24 utilized a waiver of research consent. The most common justification for a waiver of research consent related to the fact that neurologically deceased donors are not considered human subjects. In conclusion, among studies of neurologically deceased donors, research consent models vary and are inconsistently reported. Consensus and standardization in the application of research consent models will help to advance this emerging field of research.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.146
metaresearch head score (Gemma)0.466
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesMetaresearch, Research integrity
Consensus categoriesnone
DomainCandidate signal: Methods · Consensus signal: none
Study designCandidate signal: Systematic review · Consensus signal: Systematic review
GenreCandidate signal: Review · Consensus signal: Review
Teacher disagreement score0.997
Threshold uncertainty score0.774

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.1460.466
Meta-epidemiology (narrow)0.0020.002
Meta-epidemiology (broad)0.0080.011
Bibliometrics0.0140.017
Science and technology studies0.0020.003
Scholarly communication0.0070.010
Open science0.0040.004
Research integrity0.0030.003
Insufficient payload (model declined to judge)0.0050.001

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.923
GPT teacher head0.730
Teacher spread0.193 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.

Study designSystematic review
DomainMethods
GenreReview

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations4
Published2020
Admission routes1
Has abstractyes

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