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Record W4407881144 · doi:10.1186/s40900-025-00679-2

Improving ways of working with researchers with lived expertise (of homelessness)

2025· letter· en· W4407881144 on OpenAlexafffund
Frank Crichlow, A. Dyer, Jesse Jenkinson

Bibliographic record

VenueResearch Involvement and Engagement · 2025
Typeletter
Languageen
FieldHealth Professions
TopicMental Health and Patient Involvement
Canadian institutionsRegent Park Community Health Centre
FundersCanadian Institutes of Health Research
KeywordsLived experienceSociologyPsychologyEngineering ethicsPsychotherapistEngineering

Abstract

fetched live from OpenAlex

It has become increasingly apparent that conducting rigorous, relevant and accepted research requires including Researchers with Lived Expertise/Experience (RWLE) in the research process. Including RWLE can create new knowledge rooted in new perspectives, and support research that is more relevant to affected populations. However, the conversation has primarily focused on how involving RWLE can improve research outcomes, so that inequities are being better addressed; there is very little focus on how involvement in research can and should benefit RWLE themselves, nor of how the research process itself can demonstrate a commitment to addressing inequities. In this commentary, we reflect on the experiences of two RWLE of Homelessness, and a Senior Research Associate who all worked together on a recent study. Informed by the challenges we faced and ways we navigated these, here we discuss key issues that must be given more consideration as involving RWLE becomes a necessary part of conducting research. Research teams must consider the issues of pay equity and job security for RLWE who often work on short-term contracts; supporting the professional development of RWLE for their own career advancement; and paying attention to the language we use and how we communicate research findings so they are accessible. There is a unique opportunity for research teams to incorporate a philosophical and practical orientation towards equity during the research process. While research seeks to understand and explain a phenomenon, it must simultaneously seek to address this very phenomenon through how the research is conducted. Our aim is to further the discussion around including RWLE, and to provide tangible suggestions for research organizations and teams. It is widely understood that involving individuals with lived expertise, often called Researchers with Lived Expertise/Experience (RWLE), in research is important. There are clear benefits for the relevance, quality, and acceptance of research findings. Including RWLE can create new knowledge and perspectives, and support research that is more relevant to the populations experiencing issues. However, the conversation has primarily focused on how involvement of RWLE can improve the research outcomes, so that inequities are being better addressed; there is very little focus on how involvement in research should benefit RWLE themselves, nor of the broader need to address inequities through the research process (not just the research outcomes). Research teams must consider the issues of pay equity and job security for RLWE who often work on short-term contracts; supporting the professional development of RWLE for their own career advancement; and paying attention to the language we use and how we communicate research findings so it is accessible. In this commentary, we reflect on the experiences of two RWLE of Homelessness, and a Senior Research Associate who all worked together on a recent study. Through the challenges we faced and ways we navigated these, we discuss key issues that must be given more consideration as involving RWLE is recognized as a necessary part of conducting research.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.009
metaresearch head score (Gemma)0.000
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesMeta-epidemiology (narrow), Science and technology studies, Research integrity
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Not applicable · Consensus signal: Not applicable
GenreCandidate signal: Commentary · Consensus signal: Commentary
Teacher disagreement score0.154
Threshold uncertainty score1.000

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0090.000
Meta-epidemiology (narrow)0.0010.000
Meta-epidemiology (broad)0.0010.000
Bibliometrics0.0010.001
Science and technology studies0.0020.001
Scholarly communication0.0000.000
Open science0.0010.001
Research integrity0.0010.008
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.729
GPT teacher head0.474
Teacher spread0.255 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one teacher head, not a consensus.

Study designNot applicable
Domainnot available
GenreCommentary

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations0
Published2025
Admission routes2
Has abstractyes

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