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Record W4408412481 · doi:10.1136/jmg-2024-110465

Canadian consensus for the assessment and testing of Lynch syndrome

2025· article· en· W4408412481 on OpenAlexaffabout
Melyssa Aronson, Laura Palma, Kara Semotiuk, Jennifer Nuk, Aaron Pollett, Harminder Singh, Heidi Rothenmund, Hilary Racher, Jaime Jessen, Stephen E. Pautler, Alison Rusnak, Mari Rutka, Holly Etchegary, Teresa Tiano, Pardeep Kaurah, Lesa Dawson, Andrea Hawrysh, Thomas R. Ward, Angela C. Bedard, Brandon S. Sheffield, Jordan Lerner‐Ellis, Karine Jacob, Sarah E. Ferguson, Christina Kim, Erin Chamberlain, Kimberly Dornan, Larissa Waldman, Spring Holter, Janice Horte, Angela Hyde, Janice S. Kwon, Andrée MacMillan, Melanie O’Loughlin, Uri Tabori, Steven Gallinger, Raymond H. Kim

Bibliographic record

VenueJournal of Medical Genetics · 2025
Typearticle
Languageen
FieldMedicine
TopicGenetic factors in colorectal cancer
Canadian institutionsOntario Institute for Cancer ResearchStollery Children's HospitalUniversity of Alberta HospitalPrincess Margaret Cancer CentreSunnybrook Health Science CentreSinai Health SystemUniversity of British ColumbiaWilliam Osler Health SystemAlberta Hospital EdmontonIzaak Walton Killam Health CentreSaskatchewan HealthSaskatchewan Health AuthorityMemorial University of NewfoundlandUniversity of TorontoHospital for Sick ChildrenWestern UniversityBrampton Civic HospitalManitoba HealthHealth Sciences CentreUniversity Health NetworkDr. H. Bliss Murphy Cancer CentreUniversity of ManitobaCancerCare ManitobaChildren's Hospital of Eastern OntarioMcGill University Health CentreMcGill UniversityAlberta Health ServicesBC Cancer Agency
Fundersnot available
KeywordsLynch syndromeGenetic testingCarrier testingGuidelineMedicineHealth careFamily medicinePolitical scienceCancerGeneticsInternal medicinePathologyBiologyDNA mismatch repairColorectal cancer

Abstract

fetched live from OpenAlex

BACKGROUND: Lynch syndrome (LS) is an autosomal dominant cancer predisposition syndrome caused by a germline pathogenic variant, or epigenetic silencing, of a mismatch repair (MMR) gene, leading to a wide cancer spectrum with gene-specific penetrance. Ascertainment, assessment and testing of LS individuals is complex. A Canadian national guideline is needed to ensure equitable access to patient care across the country. METHODS: The Canadian Lynch Syndrome (CDN-LS) working group was formed in 2021, consisting of 37 multidisciplinary LS experts and patient partners. To formulate consensus statements, a national environmental scan, Canadian clinical survey and literature review were undertaken. The e-Delphi method was used to reach consensus statements among the CDN-LS group. RESULTS: , somatic MMR), germline testing, therapeutics and patient advocacy. CONCLUSION: This is the first comprehensive Canadian guideline for LS providing guidance to genetic specialists, laboratories, primary care providers and healthcare providers caring for patients with LS. It is endorsed by the Canadian College of Medical Genetics and the Canadian Association of Genetic Counsellors. The consensus statements are presented as a model for standard of care that improves equitable access to health services for LS across the country. Future work should include a national consensus on LS surveillance, with a goal to harmonise LS care across all provincial and territorial healthcare authorities.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.030
metaresearch head score (Gemma)0.083
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Not applicable · Consensus signal: Not applicable
GenreCandidate signal: Other · Consensus signal: none
Teacher disagreement score0.259
Threshold uncertainty score0.521

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.0300.083
Meta-epidemiology (narrow)0.0010.001
Meta-epidemiology (broad)0.0010.003
Bibliometrics0.0080.006
Science and technology studies0.0050.003
Scholarly communication0.0030.001
Open science0.0070.004
Research integrity0.0070.006
Insufficient payload (model declined to judge)0.0140.005

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.039
GPT teacher head0.368
Teacher spread0.329 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designNot applicable
Domainnot available
GenreOther

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations3
Published2025
Admission routes2
Has abstractyes

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Same venueJournal of Medical GeneticsSame topicGenetic factors in colorectal cancerFrench-language works237,207