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Record W4413112197 · doi:10.1093/eurheartj/ehaf380

Titin-related familial dilated cardiomyopathy: factors associated with disease onset

2025· article· en· W4413112197 on OpenAlexfundno aff
Renée Johnson, Robert A. Fletcher, Stacey Peters, Monique Ohanian, Magdalena Soka, Andrei Smolnikov, Katherine E Abihider, Michael J. Ackerman, Flavie Ader, Mohammed Akhtar, Ahmad S. Amin, Euan A. Ashley, J. Atherton, Rachel Austin, Annette F. Baas, Richard D. Bagnall, Samantha Barratt Ross, Jean‐Louis Blouin, Emily E. Brown, Henning Bundgaard, Douglas Cannie, Przemysław Chmielewski, Gemma Correnti, María G. Crespo‐Leiro, Matteo Dal Ferro, Lisa Dellefave‐Castillo, Fernándo Domínguez, Dennis Dooijes, Anne M. Dybro, Youssef Ed Demri, Mohamed El Hachmi, Luis Escobar-López, Sarah Foye, Maria Franaszczyk, Marta Gigli, Esther González López, Adeline Goudal, Sharon Graw, Michel Guipponi, Eric Haan, Jan Haas, Daniel Hammersley, Frederikke Hansen, Chris Hayward, Thomas Morris Hey, Stéphane Heymans, Carolyn Y. Ho, Arjan C. Houweling, Jodie Ingles, A. Ingrey, Andrew Jabbour, Paul A. James, Joeri A. Jansweijer, Jan D.H. Jongbloed, Anne Keogh, José M. Larrañaga‐Moreira, Ronald H. Lekanne Deprez, Ivan Macciocca, Peter S. Macdonald, Nicolas Mansencal, Julia Mansour, Cristina Martinez‐Veira, Barbara McDonough, Julie McGaughran, Kristen Medo, Marco Merlo, Ewa Michalak, Lorenzo Monserrat, Helen Mountain, Steven A. Muller, Anne M. Murphy, Brittney Murray, Emily C. Oates, Elizabeth Ormondroyd, Nicholas Pachter, Alessia Paldino, Aurélien Palmyre, Naveen L. Pereira, Kermshlise Picard, Nicola Poplawski, Sanjay Prasad, Julie Proukhnitzky, Jean-François Pruny, Patricia Réant, Pascale Richard, Anne Ronan, Farbod Sedaghat‐Hamedani, Christopher Semsarian, Garrett Storm, Sophie L.V.M. Stroeks, Petros Syrris, Matthew R.G. Taylor, Kate Thomson, Tina Thompson, J. Peter van Tintelen, Christoffer Rasmus Vissing, K. Waddell-Smith, Mathew Wallis, Dominica Zentner, Lesley C. Adès, Dimithu Alankarage, Morgan almog, Mohammad Al-Shinnag, Chris Barnett, Gillian M. Blue, Simon Bodek, Kirsten Boggs, Michael Bogwitz, Tiffany Boughtwood, Alessandra Bray, Marie‐Jo Brion, Jaye Brown, Robert J. Bryson‐Richardson, Leslie Burnett, Charlotte Burns, Michelle Cao, Will Carr, Sarah Casauria, Heather V. Chalinor, Yu‐Chen Chang, Gavin Chapman, Theodosia Charitou, Belinda Chong, Felicity Collins, Kathy Cox, Fiona Cunningham, Debjani Das, Jason A. Davis, Andrew M. Davis, Paul De Fazio, M. De Silva, Nicola Den Elzen, Sophie Devery, Julia Dobbins, Sally L. Dunwoodie, Nathan Dwyer, Stefanie Elbracht-Leong, David A. Elliott, A. Juanico Enríquez, Diane Fatkin, Vanessa S. Fear, Miriam Fine, Keri Finlay, Denisse Garza, Eleni Giannoulatou, Laura Gongolidis, Belinda Gray, Cassie Greer, Eric Haan, Mathilda Haas, Bernadette Hanna, Richard P. Harvey, Janette Hayward, Adam P. Hill, Georgie Hollingsworth, Georgina E. Hollway, Ari Horton, Denise Howting, Jodie Ingles, Joanne Isbister, Matilda R. Jackson, Sarah Jane-Pantaleo, Renee L. Johnson, Andrew Kelly, Sarah L. King‐Smith, Edwin P. Kirk, Sarah Kummerfeld, Timo Lassman, Jonathon Lipton, Sebastian Lunke, Paul MacIntyre, Evanthia O. Madelli, Amali Mallawaarachchi, Ellenore Martin, Jacob Mathew, Tessa Mattiske, Alison McLean, James W. McNamara, C. Medi, Alejandro Metke, Di Milnes, Michael R. Milward, A. Morrish, Jim Morwood, David Mowat, Chai‐Ann Ng, Natalie Nowak, Noelia Nunez Martinez, S. S. O'Sullivan, Angela Overkov, Chirag Patel, Mark J. Perrin, Matthew Perry, Andreas Pflaumer, Peta Phillips, Thuan Phuong, Rachel Pope-Couston, Nicola K. Poplawski, Preeti Punni, Michael C. Quinn, Sulekha Rajagopalan, Hariharan Raju, Emma M. Rath, Matthew Regan, Jonathan Rogers, Mark Ryan, Sarah A. Sandaradura, Nicole Schönrock, Paul Scuffham, Isabella Sherburn, Mary-Clare Sherlock, Emma S. Singer, Carla Smerdon, Janine Smith, Renee Smyth, Zornitza Stark, Raymond W. Sy, Dotti Tang, Jessica Taylor, Shelby Taylor, Michel Tchan, Jordan Thorpe, Alison Trainer, Gunjan Trivedi, Giulia Valente, Karin van Spaendonck‐Zwarts, Jamie I. Vandenberg, Kunal Verma, Miranda E. Vidgen, Jitendra K. Vohra, Kathryn Waddel-Smith, Robert G Weintraub, Meredith Wilson, David S. Winlaw, Lisa Worgan, Linda Wornham, Kathy H. C. Wu, Laura Yeates, Clare Arnott, Ali J. Marian, Jae Won Oh, Siv Fokstuen, Cynthia A. James, Roberto Barriales‐Villa, Benjamin Meder, Karim Wahbi, John R. Giudicessi, Victoria N. Parikh, James S. Ware, Nicolas Piriou, Caroline Rooryck, Neal K. Lakdawala, Luisa Mestroni, Gianfranco Sinagra, Perry Elliott, Hugh Watkins, Elizabeth M. McNally, Philippe Charron, Pablo García‐Pavía, María Luisa Peña‐Peña, Jens Mogensen, Alex Hørby Christensen, Zofia T. Bilińska, Torsten B. Rasmussen, Jonathan G. Seidman, Christine E. Seidman, Anneline S.J.M. te Riele, Job A.J. Verdonschot, Yigal M. Pinto, Imke Christiaans, Diane Fatkin

Bibliographic record

VenueEuropean Heart Journal · 2025
Typearticle
Languageen
FieldMedicine
TopicCardiomyopathy and Myosin Studies
Canadian institutionsnot available
FundersHealth Data Research UKMedical Research Future FundCHIST-ERAHORIZON EUROPE European Innovation CouncilNational Human Genome Research InstituteCentro de Investigación Biomédica en Red Enfermedades CardiovascularesNational Heart, Lung, and Blood InstituteEuropean Regional Development FundCentro Nacional de Investigaciones CardiovascularesMedical Research CouncilMedical Research Council CanadaBundesministerium für Bildung und FrauenNederlandse Organisatie voor Wetenschappelijk OnderzoekHartstichtingZonMwCardiac Society of Australia and New ZealandNational Heart Foundation of AustraliaInstituto de Salud Carlos IIIAmgenNational Health and Medical Research CouncilEuropean Society of CardiologyMinisterio de Economía y CompetitividadSarnoff Cardiovascular Research FoundationBritish Heart FoundationNational Society of Genetic CounselorsSir Jules Thorn Charitable TrustNational Institute on AgingAbbott LaboratoriesNational Institute for Health and Care ResearchNSW Ministry of HealthHoward Hughes Medical InstituteCytokineticsSanofiHjerteforeningenAlan Turing InstituteWellcome TrustNational Institutes of HealthEuropean Research Area Network on Cardiovascular DiseasesBioMarin PharmaceuticalNIHR Imperial Biomedical Research CentreBristol-Myers Squibb CanadaEuropean CommissionAstraZenecaAlnylam PharmaceuticalsAgence Nationale de la RechercheAustralian GovernmentPfizerBristol-Myers SquibbMinisterio de Ciencia e InnovaciónNovo NordiskSt. Vincent's Clinic FoundationAmerican Heart Association
KeywordsMedicineInternal medicineOdds ratioCardiologyCardiomyopathyDilated cardiomyopathyConfidence intervalAtrial fibrillationPopulationRisk factorHeart failure

Abstract

fetched live from OpenAlex

BACKGROUND AND AIMS: Truncating variants in the TTN gene (TTNtv) are the most common genetic cause of dilated cardiomyopathy (DCM) but also occur as incidental findings in the general population. This study investigated factors associated with the clinical manifestation of TTNtv. METHODS: An international multicentre retrospective observational study was performed in families with TTNtv-related DCM. Shared frailty models were used to estimate associations of variant characteristics with lifetime risk of DCM, and logistic regression to estimate odds ratios (ORs) for individual-level clinical risk factor profiles (cardiac conditions, cardiovascular comorbidities, lifestyle) and DCM. RESULTS: A total of 3158 subjects in 1043 families with TTNtv-related DCM were studied. TTNtv-positive subjects were 21-fold more likely to develop DCM [OR, 21.21; 95% confidence interval (CI), 14.80-30.39]. Disease onset was earlier in males, but was similar for TTNtv of different types and locations. The presence of clinical risk factors was associated with earlier DCM onset (OR, 3.41; 95% CI, 2.06-5.64), with a prior history of atrial fibrillation having a two-fold increased odds of DCM (OR, 2.05; 95% CI, 1.27-3.32). The prevalence of clinical risk factors increased with age; however, the strength of the DCM association was greatest for young-onset (<30 years) disease (OR, 4.75; 95% CI, 2.35-9.60). Administration of beta-adrenergic receptor or renin-angiotensin system-blocking drugs prior to overt DCM was associated with 87% reduced odds of DCM (OR, .13; 95% CI, .08-.23). CONCLUSIONS: Disease onset in TTNtv-associated familial DCM is dependent on individual patient context and is potentially modifiable by risk factor management and prophylactic therapeutic intervention.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.001
metaresearch head score (Gemma)0.003
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: Observational
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.003
Threshold uncertainty score0.006

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.0010.003
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.001
Bibliometrics0.0010.001
Science and technology studies0.0010.000
Scholarly communication0.0010.000
Open science0.0000.000
Research integrity0.0010.001
Insufficient payload (model declined to judge)0.0020.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.031
GPT teacher head0.279
Teacher spread0.248 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designObservational
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations8
Published2025
Admission routes1
Has abstractyes

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