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Record W4415568585 · doi:10.2196/76740

Assessing the Usability of a Novel Toolkit for Creating Visual Key Information Pages for Informed Consent for Research: Mixed Methods Usability Study

2025· article· en· W4415568585 on OpenAlexvenueno aff
Elliot Goldstein, Zoe Troubhh, Krista Cooksey, Molly Volkmar, Victor Catalan Gallegos, Kimberly A. Kaphingst, Clara N. Lee, Ashley J. Housten, Jessica Mozersky, Mary C. Politi

Bibliographic record

VenueJMIR Formative Research · 2025
Typearticle
Languageen
FieldHealth Professions
TopicHealth Literacy and Information Accessibility
Canadian institutionsnot available
FundersAgency for Healthcare Research and Quality
KeywordsUsabilityKey (lock)Informed consentSoftwareWeb usabilityPluralistic walkthrough

Abstract

fetched live from OpenAlex

Background: Key information pages for informed consent require a concise summary of information to improve participant understanding but have not widely incorporated health literacy best practices. Objective: We previously developed a visual key information template to improve informed consent. In this study, we conducted usability testing of this customizable one-page key information template. Methods: We used the Designing for Accelerated Translation framework to plan for actionable, efficient usability testing. Participants (N=15) were asked to spend about 20 minutes using the visual key information template and engaging in a think-aloud protocol. They then responded to qualitative debrief questions about the template and validated measures of acceptability, appropriateness, and feasibility. Interviews were recorded, transcribed, and analyzed with a usability-focused codebook and thematic analysis. Results: The toolkit was positively received. Common usability challenges included interpreting instructions, condensing consent content, replacing and resizing icons, and fitting information into template boxes. Participants had positive experiences with toolkit elements, particularly with the icon library, and generally felt the toolkit was easy to use and encouraged simplification of information. Some participants noted not fully reviewing instructions before the study and discussed specific technical abilities as potential limitations of widespread use. We documented suggestions and made changes to the toolkit in response to feedback received. Conclusions: Overall, participants considered the toolkit to be appropriate, acceptable, and feasible. Additional implementation outcomes are being collected in a multisite stepped-wedge randomized trial. Further research may investigate changes to format and software that balances functionality with ease of use.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.244
metaresearch head score (Gemma)0.231
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesMetaresearch
Consensus categoriesMetaresearch
DomainCandidate signal: Methods · Consensus signal: none
Study designCandidate signal: Qualitative · Consensus signal: none
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.756
Threshold uncertainty score0.932

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.2440.231
Meta-epidemiology (narrow)0.0010.001
Meta-epidemiology (broad)0.0020.002
Bibliometrics0.0030.002
Science and technology studies0.0030.003
Scholarly communication0.0050.004
Open science0.0030.005
Research integrity0.0020.002
Insufficient payload (model declined to judge)0.0030.001

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.520
GPT teacher head0.714
Teacher spread0.194 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; the direct Gemma label and the distilled Codex classifier agree on what is shown here.

Study designQualitative
DomainMethods
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations2
Published2025
Admission routes1
Has abstractyes

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